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What is the Jett Squadron?
Click here to find out.

GoodSearch: You Search...We Give!

Here are other
organizations that

are fighting

against DMD:

Charley's Fund
Ryan's Hope Foundation

Hacks for Zack

 

 

Welcome from Christine McSherry
Founder of the Jett Foundation

The mission of the Jett Foundation is to increase Worldwide awareness of Duchenne Muscular Dystrophy with the purpose of appropriating funds for research that will realize a cure for the disease and ensure that stricken children will have the opportunity of a lifetime.

See the Jett Foundation policy on donated funds.

Limited Edition Wines For a Cure

To help raise funds for the Jett Foundation, Custom Grapes is offering the following limited edition wines until July 1: Cabernet For A Cure, Courageous Chardonnay, Miraculous Merlot, Fantasy Pinot Noir, Wolf Den Sauvignon Blanc, and Celebrate Sparkling Wine. To learn more, read the press release.

You can order online at www.customgrapes.com/jett or complete and send this order form. Custom Grapes is accepting orders through July 1.

Documentary about JETTRide wins Award!

This inspirational film won Best Feature Documentary at the Hollywood East Film Festival. See the press release for more details. Click here to see a clip.The movie will make its premiere in September 2009.

Join the Conversation about DMD at the Jett Foundation NING Social Online Network
Visit http://duchennelivetoday.ning.com/

See Jett Foundation on YouTube

Click here to see an interview with Executive Director Christine McSherry

DMD Families Featured on WBUR

Click here to hear about how families are teaching medical school students about the non-medical issues that affect patients with genetic disorders like DMD.

A Message from Christine McSherry

Click here to read a message from Jett Foundation President Christine McSherry on DMD research and Jett Foundation activities.

Congratulations to our Raffle Winners

Thanks to everyone who participated in our instant game lottery ticket raffle.  The lucky winners are: Joe Roche and Andy O'Dwyer.

About the Jett Program for Pediatric Neuromuscular Disorders (JPPND)

The Jett Program for Pediatric Neuromuscular Disorders (JPPND)is a groundbreaking collaborative effort between the Jett Foundation, a leader in the fight against Duchenne Muscular Dystrophy, and Massachusetts General Hospital for Children, a world-renowned medical institution. The Center for Duchenne Muscular Dystrophy Care at Massachusetts General Hospital is the first in the Northeast devoted to an often-overlooked genetic disorder that causes boys to lose muscle function and independence. See Patriot Ledger article about the Center's opening....

NEXT DMD Roundtable Scheduled for November 7, 2009.  Check back for details!

Inspiration from the Roundtable

What has your son done to inspire you? As a parent, each of us can easily reflect on something that our son has given us, an opportunity, a change in perspective, a laugh – in some cases, the gift of humility.

These gifts were the main focus of the November DMD Roundtable. We were honored to have as our special guest Gordon Sterling and his dad, Graham.  Our conversation with the Sterlings was inspirational, helping us see that as parents of DMD boys we must BELIEVE….believe in ourselves as parents, believe that we CAN help our boys, believe that our boys will realize their dreams, believe that together we will achieve what was once thought impossible. We have created a place of hope, a place of treatment, a place where our difficult challenges are met with a compassionate physician, a place where WE are making a huge difference… the Jett Program at MassGeneral Hospital for Children. 

Click here to get information about joining the Jett Parent Association.

Contact Christine at jettfoundation@aol.com for information about upcoming DMD Roundtable events. Read about past DMD Roundtable events.

 

Jett Recommended Products
Jett Foundation is pleased to recommend these companies that provide vehicles, mobility equipment, and recreational products and services for the Duchenne Muscular Dystrophy community. Click here to learn more.

Want to help but are not sure how? Set up a First Giving webpage!

Several DMD families have launched online fundraising sites to support the work of the Jett Foundation. Please visit the following sites and learn more about these families at:

www.firstgiving.com/jeffharvey, www.firstgiving.com/cindyquitzau, www.firstgiving.com/dylanfasanowww.firstgiving.com/petebierden, www.firstgiving.com/laurietedeschi

Kids Helping Kids -- Saturday, June 13
Come to the Strawberry Festival in Topsfield and help us raise money to support children with Duchenne Muscular Dystrophy. Stop by our table at the Topsfield Bagel Bakery & Cafe, where you can: play "Dimes for Duchenne" and pop your loose change in the dinosaur mouth; buy a raffle ticket to win a beautiful chair, handpainted by Masco High School art students (thanks to Topsfield Bagel Bakery & Cafe for donating the chairs!); and buy a handmade bag (a percentage of the bag sales will go to the Jett Foundation!). For more information, contact PalsForCal@comcast.net.

Gals for Cal -- Raising Money to Fight DMD

A group of women who call themselves Gals for Cal have banded together to help 7-year-old Calvin and other little boys like him in their fight against DMD. They will be participating in the Danskin Women's Triathlon in July to raise money for DMD research. Click here to learn more Calvin and support the Gals in their efforts.

DMD Families are Making a Difference

Our families are a powerful force, propelling us toward greater achievements and better lives for our boys.  A big thank you to all of you, who through gestures large and small, support the Jett Foundation.  You have accepted the challenge to make TODAY COUNT, either through the research work that we fund collectively or through the Jett Program at MassGeneral Hospital for Children.Our collaboration with the Zack Heger Foundation is an example of how much we can accomplish when we unite behind a common goal with passion, energy and determination. Established more than a decade ago, the Zack Heger Foundation has been a tremendous partner through its support of the Jett Foundation and our research and clinical work at MGHfc. Learn what other families are doing...

Celebrity Black and Blue Bash -- Coming soon in 2009!
This black and blue event at an exclusive club in Boston will feature an auction of jeans autographed by celebrities. Enjoy live music from a blues band, great food, and our specialty drink -- the Jett Blue Cosmo! Be ready to bid on one-of-a-kind items! Online auction items will be posted soon. Event sponsors include the top designer jeans shops in the Northeast.

JettRide for DMD Research
Learn more about a group of teens who are bicycled across the country to raise funds for DMD research. For more information...

 


Jett Foundation    1-877-FLY-JETT    FAX 781-826-9523    jettfoundation@aol.com

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