![]() |
|||||||||||||
|
|||||||||||||
|
What is the Jett Squadron? Here are other are fighting against DMD: Charley's Fund
|
|||||||||||||
The mission of the Jett Foundation is to increase Worldwide awareness of Duchenne Muscular Dystrophy with the purpose of appropriating funds for research that will realize a cure for the disease and ensure that stricken children will have the opportunity of a lifetime. See the Jett Foundation policy on donated funds.
Limited Edition Wines For a Cure To help raise funds for the Jett Foundation, Custom Grapes is offering the following limited edition wines until July 1: Cabernet For A Cure, Courageous Chardonnay, Miraculous Merlot, Fantasy Pinot Noir, Wolf Den Sauvignon Blanc, and Celebrate Sparkling Wine. To learn more, read the press release. You can order online at www.customgrapes.com/jett or complete and send this order form. Custom Grapes is accepting orders through July 1. Documentary about JETTRide wins Award! This inspirational film won Best Feature Documentary at the Hollywood East Film Festival. See the press release for more details. Click here to see a clip.The movie will make its premiere in September 2009. Join the Conversation about DMD at the Jett Foundation NING Social Online Network See Jett Foundation on YouTube Click here to see an interview with Executive Director Christine McSherry DMD Families Featured on WBUR Click here to hear about how families are teaching medical school students about the non-medical issues that affect patients with genetic disorders like DMD. A Message from Christine McSherry Click here to read a message from Jett Foundation President Christine McSherry on DMD research and Jett Foundation activities. Congratulations to our Raffle Winners Thanks to everyone who participated in our instant game lottery ticket raffle. The lucky winners are: Joe Roche and Andy O'Dwyer. About the Jett Program for Pediatric Neuromuscular Disorders (JPPND) The Jett Program for Pediatric Neuromuscular Disorders (JPPND)is a groundbreaking NEXT DMD Roundtable Scheduled for November 7, 2009. Check back for details! Inspiration from the Roundtable What has your son done to inspire you? As a parent, each of us can easily reflect on something that our son has given us, an opportunity, a change in perspective, a laugh – in some cases, the gift of humility.
These gifts were the main focus of the November DMD Roundtable. We were honored to have as our special guest Gordon Sterling and his dad, Graham. Our conversation with the Sterlings was inspirational, helping us see that as parents of DMD boys we must BELIEVE….believe in ourselves as parents, believe that we CAN help our boys, believe that our boys will realize their dreams, believe that together we will achieve what was once thought impossible. We have created a place of hope, a place of treatment, a place where our difficult challenges are met with a compassionate physician, a place where WE are making a huge difference… the Jett Program at MassGeneral Hospital for Children. Click here to get information about joining the Jett Parent Association. Contact Christine at jettfoundation@aol.com for information about upcoming DMD Roundtable events. Read about past DMD Roundtable events.
|
Jett Recommended Products
Want to help but are not sure how? Set up a First Giving webpage! Several DMD families have launched online fundraising sites to support the work of the Jett Foundation. Please visit the following sites and learn more about these families at: www.firstgiving.com/jeffharvey, www.firstgiving.com/cindyquitzau, www.firstgiving.com/dylanfasano, www.firstgiving.com/petebierden, www.firstgiving.com/laurietedeschi Kids Helping Kids -- Saturday, June 13 Gals for Cal -- Raising Money to Fight DMD A group of women who call themselves Gals for Cal have banded together to help 7-year-old Calvin and other little boys like him in their fight against DMD. They will be participating in the Danskin Women's Triathlon in July to raise money for DMD research. Click here to learn more Calvin and support the Gals in their efforts. DMD Families are Making a Difference Our families are a powerful force, propelling us toward greater achievements and better lives for our boys. A big thank you to all of you, who through gestures large and small, support the Jett Foundation. You have accepted the challenge to make TODAY COUNT, either through the research work that we fund collectively or through the Jett Program at MassGeneral Hospital for Children.Our collaboration with the Zack Heger Foundation is an example of how much we can accomplish when we unite behind a common goal with passion, energy and determination. Established more than a decade ago, the Zack Heger Foundation has been a tremendous partner through its support of the Jett Foundation and our research and clinical work at MGHfc. Learn what other families are doing...
Celebrity Black and Blue Bash -- Coming soon in 2009!
|
||||||||||||
Jett Foundation 1-877-FLY-JETT FAX 781-826-9523 jettfoundation@aol.com Designed by Sullivan Creative |
|||||||||||||