There are so many resources available to help educate you on your path to learn more information about DMD. We have gathered some of them together here - along with listing links to information within this website. We hope you will take the time to explore these. If there are other links that you would like to share, please email them to Jettfoundation08@aol.com

• Individual Education
  Programs (IEPs)
• Mobility
• Education
• Advocacy
• Medical/Research
• Emotional
• MD Community
• International Organizations

Individual Education Programs (IEPs)

• The Individualized Education Program (IEP): A Blueprint for Ensuring School Success by Christine McSherry, RN, President, The Jett Foundation
• Tips for Writing an Effective IEP: Guide to the IEP from the Office of Special Education Programs, http://www.ed.gov/parents/needs/speced/iepguide/index.html
  

Mobility

• Heads Up, http://www.head-sup.com
• Mobility International, http://www.mdi.ie/
• Special Needs Advocate for Parents, http://www.snapinfo.org/
• Abledata National Assistive Technology Database, http://www.abledata.com/
• Special Child Items for Sale Bulletin Board, http://www.specialchild.com/bbs1/index.sht
• Disabled Children's Relief Fund, http://www.dcrf.com/
• Abilitations, http://www2.abilitations.com/
• Accessible Threads, http://www.accessiblethreads.com/
• AdaptiveMall.com, http://www.adaptivemall.com/
• The Boulevard, http://www.blvd.com/
• Columbia Medical Mfg., http://www.columbiamedical.com/
• Davis Made, http://www.standingdani.com/
• Flaghouse, http://www.flaghouse.com/
• Freedom Designs, http://www.freedomdesigns.com/
• Haverich Ortho Sport, http://www.haverich.com/
• Innovative Products, http://www.iphope.com/
• Leckey Products, http://www.leckey.com/
• Rehab Designs, http://www.rehabdesigns.com/
• Rifton, http://www.rifton.com/
• SnugSeat, http://www.snugseat.com/
• Boundless Playgrounds, http://boundlessplaygrounds.org/
• North American Riding for the Handicapped Association, http://www.narha.org/
• Serena's Song, http://www.serenassong.com/
• Transporting Children with Special Health Care Needs,
  http://www.aap.org/policy/RE9852.html
• Liberty Motors, http://www.libertymotorco.com/
• Freedom Motors, http://www.freedommotors.com/
• EZ-on-Vest, http://www.ezonpro.com/
• National Mobility Equipment Dealers Association, http://www.nmeda.org/
• Adapting Motor Vehicles for People with Disabilities,
  http://www.nhtsa.dot.gov/cars/rules/adaptive/brochure/brochure.html
• Wheelchair Standards Information, http://www.wheelchairstandards.pitt.edu/
• JustMobility.com, http://www.justmobility.com/
• Mobility International USA, http://www.miusa.org/
• Wheelchair Getaways, http://www.wheelchair-getaways.com/
• Wheelchair Junkie, http://www.wheelchairjunkie.com/
• Family Village: Wheelchairs, http://www.familyvillage.wisc.edu/at/wheelchairs.html
• Finding the Perfect Fit, http://www.rehabpub.com/ltrehab/232000/6.asp
• Spin Life, http://www.spinlife.com/index.cfm
• Pride Mobility, http://www.pridemobility.com/
• Invacare, http://www.invacare.com/cgi-bin/imhqprd/index.jsp
• Convaid, http://www.convaid.com/
• Levo, http://www.levo.ch/
• LifeStand, http://www.lifestand.tm.fr/
• Permobil, http://www.permobilusa.com/
  

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Education

• ToxTown, http://www.toxtown.nlm.nih.gov
• Alliance for Technology Access, http://www.ataccess.org/
• Apple Disability Resources, http://www.apple.com/disability/
• Microsoft Accessibility, http://www.microsoft.com/enable/
• Rehabilitation Engineering and Assistive Technology Society of North America,
  http://www.resna.org/
• Laureate Learning, http://www.LaureateLearning.com/
• AbleNet, http://www.ablenetinc.com/
• Exceptional Parent Magazine, http://www.eparent.com/
• KidSource Online - A Guide to Children's Literature & Disability,
  http://www.kidsource.com/NICHCY/literature.html
• Books by Joni Eareckson Tada, http://www.joniandfriends.org/root/products2.shtml
• Our Kids Book List, http://www.our-kids.org/Books/okbook.htm
• List of Books, Videos, and other references related to SMA,
  http://www.fsma.org/books.shtml
• Special Child, http://www.specialkids.com/
• Woodbine House Books on Disability for Children and Teens,
  http://www.woodbinehouse.com/
• http://www.moonchildren.com/children/
• Family & Advocates Partnership for Education, http://www.fape.org/
• School Zone, http://www.geocities.com/Heartland/Plains/6097/special.html
• Special Ed Links, http://www.geocities.com/athens/forum/7551/
• Special Education Resources on the Internet, http://seriweb.com/
• Parents Helping Parents, http://www.php.com/
• Family Village, http://www.familyvillage.wisc.edu/index.htmlx
• Internet Resources for Special Children, http://www.irsc.org:8080/irsc/irscmain.nsf
• Institute on Independent Living, http://www.independentliving.org
• Ability Forum, http://www.abilityforum.com/
• KidPower Special Needs Link,
  http://www.geocities.com/Heartland/Village/9021/links.html
• KidNeeds.com, http://www.kidneeds.com/
• Social Security Administration, http://www.ssa.gov/
• U.S. Department of Health & Human Services, http://www.dhhs.gov/
• U.S. Department of Housing and Urban Development, http://www.hud.gov/
• The National Information Center for Children & Youth with Disabilities, http://www.nichcy.org/
• Center for Drug Evaluation and Research, http://www.fda.gov/cder/
• Patient Advocate Foundation, http://www.patientadvocate.org/
• The HMO Page, http://policyweb.ichp.ufl.edu/ichp/purchaser/Default.htm
• Evaluating Managed Care Plans for Children with Special Health Needs: A Purchaser's Tool, http://policyweb.ichp.ufl.edu/ichp/purchaser/Default.htm
• ALS Association, http://www.alsa.org/
• Andrew's Buddies, http://www.andrewsbuddies.org/index2.html
• Miracle for Madison, http://www.miracleformadison.org/
• A Rinty for Kids, http://www.arfkids.com/
• Disabled Children's Relief Fund, http://www.dcrf.com/
• Dragonfly Toys, http://www.dragonflytoys.com/
  

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Advocacy

• Family & Advocates Partnership for Education, http://www.fape.org/
• Office of Special Education Programs, http://www.ed.gov/about/offices/list/osers/osep/index.html?scr=mr
• School Zone, http://www.geocities.com/Heartland/Plains/6097/special.html
• Family Voices, http://www.familyvoices.org
  

Medical/Research

• Heads Up, http://www.head-sup.com
• Medicaid Benefits Resource, http://www.kff.org/medicaidbenefits/
• Link to Clinical Trials in DMD/BMD, http://clinicaltrials.gov/ct/gui/...
• MedLine Plus, http://medlineplus.gov
• ClinicalTrials.gov, http://clinicaltrials.gov
• PubMed, http://pubmed.gov
• National Library of Medicine, http://www.nlm.nih.gov
• Respiratory physician list for muscular dystrophy patients,
  http://www.pitt.edu/~finder/respdocMD.html
• Distrofia Muscular, http://www.distrofiamuscular.net/news.htm
• CenterWatch, http://www.dfsg.org.uk
• LD Online, http://www.ldonline.com/
• Office of Dietary Supplements (ODS), http://ods.od.nih.gov/
• Your Child's IEP, http://www.ldonline.org/ld_indepth/iep/iep_guidance.html
• The Howard Hughes Medical Institute, http://www.hhmi.org/
• Gene Tests, http://www.genetests.org/
• HospitalWeb, http://neuro-www.mgh.harvard.edu/hospitalweb.shtml
• RxList, http://www.rxlist.com/
• Boston Research and Training Center in Rehabilitation and Childhood Trauma,
  http://www.nemc.org/home/
• TASC Network, http://www.tascnetwork.net/
• Progressive Medical, http://www.progressivemedicalinc.com/products.htm
• International Ventilator Users Network, http://www.post-polio.org/
• Respiratory Care Online, http://www.rcjournal.com/
• J.H. Emerson, http://www.jhemerson.com/
• Percussion Corp, http://www.medspecialties.com/pages/percussionaire.html
• American Biosystems, http://www.abivest.com/
• The CPAP Store, http://www.owt.com/conjo/
• SleepNet, http://www.sleep-net.com/
• Scoliosis Research Society, http://srs.org/
• Scoliosis World, http://www.scoliosis-world.com/
• Search PubMed, http://www.ncbi.nlm.nih.gov:80/entrez/query.fcgi?db=PubMed
• Neuroscience on the Internet, http://www.neuroguide.com/
  

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Emotional

• Book: Moonrise Written by: Penny Wolfson. St. Martin's Press, March 2003
• DMD Pioneers, http://www.dmdpioneers.org/moving.htm
• Hope for Muscular Dystrophy Community, http://groups.msn.com/HopeforMD
• Crooked Rainbows, www.crookedrainbows.com
• Family Village, http://www.familyvillage.wisc.edu/index.htmlx
• The Compassionate Friends, http://www.compassionatefriends.org/
• A Rinty for Kids, http://www.arfkids.com/
• Band-aides and Blackboards, http://www.faculty.fairfield.edu/fleitas/contents.html
• Halloween Costumes, http://www.bridgeschool.org/about/about_halloween.html
• Special Families, http://www.specialfamilies.com/
• theStatus.com, http://www.thestatus.com/
• Innoculate Personal Edition, https://www1.my-etrust.com/services/ipe_support.cfm
• Free Translation, http://www.freetranslation.com
  

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MD Community

• National Center on Birth Defects and Developmental Disabilities,
  http://www.cdc.gov/ncbddd/partners.htm
• United States, http://www.mdausa.org/
• Muscular Dystrophy Family Foundation (not associated with MDA), http://www.mdff.org/
• Disabled Children's Relief Fund, http://www.dcrf.com/
  

International Organizations

• Italy, http://www.parentproject.org/Italia
• Netherlands, http://duchenne.plant.nl/nieuw/index.html
• UK: Duchenne Family Support Group, http://www.dfsg.org.uk
• Canada, http://www.mdac.ca/
• Ireland, http://www.mdi.ie/

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Jett Foundation    1-877-FLY-JETT    FAX 781-826-9523    jettfoundation@aol.com