Calendar of Events

Jett Foundation
26 Columbia Road
Pembroke, MA 02359
1-877-FLY-JETT
FAX 781-826-9523
jettfoundation@aol.com

The Jett Program for Pediatric Neuromuscular
Disorders at MassGeneral Hospital for Children

Coordinated Care for Children with Duchenne Muscular Dystrophy and other Neuromuscular Disorders

The Jett Program for Pediatric Neuromuscular Disorders (JPPND) is a collaborative effort of the Jett Foundation, a leader in the fight against Duchenne Muscular Dystrophy (DMD), and MassGeneral Hospital for Children, a world-renowned academic medical center.

Click on one of these links to learn more:

Jett Program for Pediatric Neuromuscular Disorders

The JPPND was created to provide state-of-the-art interdisciplinary care to children affected by DMD and other complex neuromuscular diseases. While providing coordinated care for children, the JPPND team - which comprises specialists in neurology, cardiology, pulmonology, endocrinology, genetics, and nursing, as well as allied health professionals including a physical therapist, orthotist, dietician, and social worker - also works collaboratively to advance research and provide education which will lead to better understanding and treatment of DMD and other neuromuscular diseases.

The JPPND is a circle of care for the whole child and family providing:

  • A supportive network for parents and families facilitating communication, sharing information, and fostering networks through the Jett Parent Association led by Jett Family Advocate, Christine McSherry RN;
  • The application of "bench to bedside" research;
  • Open and frequent communication with the patient's community-based care providers;
  • The infrastructure necessary to conduct clinical trials; and
  • An exchange of knowledge through teaching and mentoring future clinician-scientists necessary to advance treatment of this debilitating disease.

The JPPND offers a renewed sense of spirit and hope for this and future generations of boys with DMD and children with other neuromuscular disorders.

Brian Tseng, MD, PhD

Brian Tseng, MD, PhD is the leading the DMD research efforts at MGHfC. Click here to learn about Dr. Tseng's work.

The Jett Parent Association

A Supportive Network of Families
When your child is diagnosed with a life-threatening disease, it can be one of the most devastating and frightening moments of your life. The Jett Parent Association is a group of parents who have lived through that moment, and have gathered together to help each other on this difficult journey. You are not alone. As a supportive network of families with children with Duchenne Muscular Dystrophy (DMD) and other neuromuscular disorders, we are here to lend an ear, exchange information, share our triumphs, voice our fears, and much, much more.

Facilitator Christine McSherry, RN, will regularly update parent association members on the latest news on DMD research, treatments and clinical trials. Members are also invited to attend the twice-annual DMD Family Roundtable. At the roundtable, DMD clinicians answer questions from families about all aspects of our children's disease and treatment.

Each of us has much knowledge, empathy and courage to share. We welcome you to join the Jett Parent Association.

Click here to join the Jett Parent Association

Jett Foundation Family Advocate

Christine McSherry, whose son Jett has Duchenne Muscular Dystrophy, also serves as the family advocate for the Jett Program for Pediatric Neuromuscular Disorders. In that role, she offers families thoughtful guidance and support. She can help out in many ways, including:

  • Explaining the various tests that may be ordered by your physician - what to expect with the procedure and what information will be gained by the test
  • Explaining in layman's terms various protocols for treatment and offer support as families choose a course of action
  • Serving as a parent advocate with healthcare providers, schools and other parties
  • Making suggestions and referrals for services, support groups and information
  • Helping connect families with the services they need in their community, including special education services and assistive equipment

For more information, contact Christine at 1-877-FLY-JETT (359-5388).

The Jett Squadron

The Jett Squadron is a special team of philanthropic leaders providing significant support to the Jett Program for Neuromuscular Disorders at MGHfC. Through their generous contributions, members of The Jett Squadron "prepare the flight deck" - ensuring that our mission will really take off!

Donors of $2,500 or more are invited to fly in formation with The Jett Squadron. The Jett Squadron will periodically receive special invitations and access to information and updates. The group will also come together annually to celebrate the growth and success of the Jett Program for Pediatric Neuromuscular Disorders at MGHfC.

Christine McSherry invites you to join the Jett Squadron. Read the invitation.

For more information on the Jett Foundation, the sponsor of JPPND, please contact the Jett Foundation at 1-877-FLY-JETT or jettfoundation@aol.com.



Jett Foundation    1-877-FLY-JETT    FAX 781-826-9523    jettfoundation@aol.com
The Jett Foundation – Fighting Duchenne Muscular Dystrophy