Press Release: Jett Foundation Helps Massachusetts Family Support Son Living With Duchenne Muscular Dystrophy

BEVERLY, Mass. - October 24, 2017 - Jett Foundation, a non-profit organization dedicated to raising awareness and funds for Duchenne muscular dystrophy, is helping a family from Beverly, Mass. purchase a lateral rotation bed through their financial assistance program, Jett Giving Fund. Max Gaudenzi, a 22-year-old with Duchenne, and his family have raised half the funds needed for his $45,000 rotating bed system through their First Giving Page.  ProBed Medical USA, Inc.,  has generously donated $10,000 to reduce the price of his Freedom Bed and Jett Foundation is matching the remaining 50 percent to purchase the bed for the Gaudenzi family. Max is set to receive his bed on Friday, Oct. 27, 2017.

Health insurance often won’t cover all specialized medical and accessibility equipment such as scooters, shower chairs, ramps, rotational medical beds, platform lifts and handicap accessible vans; items needed when suffering from a progressive muscle-wasting disorder. Without this equipment, those with Duchenne struggle to participate in the kinds of activities that most people take for granted, such as going to and from school and being able to sleep at night.

“Each night, I call my parents six times to have them help me turn him in my  bed,” said Max Gaudenzi. “As a result, my parents don’t sleep well at night and can’t perform well at work the next day. Duchenne doesn’t just affect me; it affects everyone near me.”

A person living with Duchenne cannot turn themselves at night; something an able-bodied person does once every 10-12 minutes while sleeping. This movement is critical to Max’s health as it keeps blood flowing throughout bodily tissues. When that blood flow is restricted, there is an increased risk for pressure injuries, pneumonia, accelerated muscle degeneration, and other life-threatening side effects.  The Freedom Bed is designed to mimic the body’s natural movement at night, providing continuous movement to the sleeping person. Thanks to the Jett Giving Fund, the Gaudenzi family will be able to receive the sleep they desperately need, resulting in overall better health for the entire household.

Launched earlier this year, the Jett Giving Fund has helped transform lives of countless families across the country as the Jett Foundation helps them raise funds for life-changing equipment vital to their health. To learn more about the Jett Giving Fund or to become a sponsor, please visit: www.jettfoundation.org/givingfund.

To learn more about the Freedom Bed, please visit www.pro-bed.com.

 

About Duchenne muscular dystrophy

Diagnosed during childhood, Duchenne is a progressive neuromuscular disorder that causes a loss of motor, pulmonary, and cardiac function, and premature death. It affects every one in 3,500 live male births and some females. Duchenne has no cure. Children with Duchenne are born seemingly healthy and decline over time, usually losing their ability to walk around the age of 12 and succumbing to the disease in their early to mid-twenties. 

 

About Jett Foundation

Since 2001, Jett Foundation, located in Kingston, Mass., has worked to find treatments and a cure for Duchenne muscular dystrophy while improving the lives of those affected by Duchenne through direct service, awareness, and educational programs. Jett Foundation is a registered charity with 501(c)(3) status from the IRS; all donations are tax deductible. www.jettfoundation.org.

 

Media Contact for Jett Foundation
Jon Salas, jon@hollywoodagency.com

 

Onsite Contact for Jett Foundation

Gabriella Diniz, gabriella@jettfoundation.org