PRESS RELEASE - Marietta, OH – Jett Foundation, a non-profit organization dedicated to raising awareness and funds for Duchenne muscular dystrophy, is helping a family from Philippi, West Virginia purchase an accessible van through their financial assistance program, Jett Giving Fund. Zachary (Zach) and Tyler Poling, 12 and 10-year-olds with Duchenne and their mom, Jennifer Poling, have raised half the funds needed for their $36,812 accessible van through their First Giving Page. Jett Foundation is matching the remaining 50 percent to purchase the van for the family. Zach, Tyler, and their family are set to receive their van on Tuesday, July 10, 2018 at Marietta Mobility Services, 221 Pike St, Marietta, OH 45750.
“Both boys are currently in middle school and they are realizing now they can’t physically keep up with their peers as they get fatigued throughout the day and teased by other kids. And, Zach has been recently diagnosed on the Autism Spectrum Disorder which has made our life a little more complicated,” says Jennifer Poling. “This van will enable them to go places like other preteens and stay engaged in community, have comfort and safety as we drive to doctor appointments, and get them to and from school with no limitations.”
Health insurance often won’t cover all specialized medical and accessibility equipment such as scooters, shower chairs, ramps, rotational medical beds, platform lifts, and handicap accessible vans; items needed when suffering from a progressive muscle-wasting disorder. Without this equipment, those with Duchenne struggle to participate in the kinds of activities that most people take for granted, such as going to and from doctor’s appointments, navigating the hallways at school, and going to the mall with friends.
“I know from personal experience that vans, scooters, rotating hospital beds, and stair lifts are vital to improving the quality of life of someone with Duchenne. I also know how incredibly expensive that equipment is, and how little health insurance actually covers,” says Christine McSherry, founder of Jett Foundation and mom of a 22-year-old with Duchenne. “We started Jett Giving Fund to try to make life-changing equipment just a little more obtainable for individuals affected by Duchenne.”
Launched last year, the fund has helped transform lives of countless families across the country. To learn more about Jett Giving Fund or to become a sponsor, please visit: https://www.jettfoundation.org/jett-giving-fund/.
About Duchenne muscular dystrophy
Diagnosed during childhood, Duchenne is a progressive neuromuscular disorder that causes a loss of motor, pulmonary, and cardiac function, and premature death. It affects every one in 3,500 live male births and some females. Duchenne has no cure. Children with Duchenne are born seemingly healthy and decline over time, usually losing their ability to walk around the age of 12 and succumbing to the disease in their early to mid-twenties.
About Jett Foundation
Since 2001, Jett Foundation, a nonprofit located in Plymouth, MA, has worked to extend and enrich the lives of individuals affected by Duchenne muscular dystrophy and other neuromuscular disorders. It does this by partnering with families impacted by Duchenne muscular dystrophy through empowering educational programming, transformational direct service experiences, and by accelerating development of life-changing treatments. For more, visit www.jettfoundation.org.
Media Contact for Jett Foundation
Gabriella Diniz, firstname.lastname@example.org, 774-226-3694
Onsite Contact for Jett Foundation
Danielle Edwards, 732-682-3864