Jett Foundation Helps Ohio Family Purchase Accessible Van for Two Sons Living with Duchenne Muscular Dystrophy

Beverly, OH – September 10, 2018 - Jett Foundation, a non-profit organization dedicated to raising awareness and funds for Duchenne muscular dystrophy, is helping a family from Beverly, Ohio purchase an accessible van through their financial assistance program, Jett Giving Fund. Brothers Kyle, 21, and Travis Gregory, 17, both with Duchenne, and their parents, Tammy and Rusty Gregory, have raised half the funds needed for their $44,000 accessible van through their fundraising page. Jett Foundation is matching the remaining 50 percent to purchase the van for the family. Kyle, Travis, and their parents are set to receive their van on Thursday, September 13, 2018.

“This van will make it easier to haul around Kyle and Travis’s power chairs,” says Tammy Gregory, the boys’ mom. “At this point in the progression of the disease, Kyle relies on his power chair for long distances. Both of our boys are increasingly having trouble walking, can't climb stairs, and need help getting up off furniture.”

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Health insurance often won’t cover all specialized medical and accessibility equipment such as scooters, shower chairs, ramps, rotational medical beds, platform lifts, and handicap accessible vans; items needed when suffering from a progressive muscle-wasting disorder. Without this equipment, those with Duchenne struggle to participate in the kinds of activities that most people take for granted, such as going to and from doctor’s appointments, navigating the hallways at school, and going to the mall with friends.

“I know from personal experience that vans, scooters, rotating hospital beds, and stair lifts are vital to improving the quality of life of someone with Duchenne. I also know how incredibly expensive that equipment is, and how little health insurance actually covers,” says Christine McSherry, founder of Jett Foundation and mom of a 22-year-old with Duchenne. “We started Jett Giving Fund to try to make life-changing equipment just a little more obtainable for individuals affected by Duchenne.”

Launched last year, the fund has helped transform lives of countless families across the country. To learn more about Jett Giving Fund or to become a sponsor, please visit: https://www.jettfoundation.org/jett-giving-fund/.

About Duchenne muscular dystrophy
Diagnosed during childhood, Duchenne is a progressive neuromuscular disorder that causes a loss of motor, pulmonary, and cardiac function, and premature death. It affects every one in 3,500 live male births and some females. Duchenne has no cure. Children with Duchenne are born seemingly healthy and decline over time, usually losing their ability to walk around the age of 12 and succumbing to the disease in their early to mid-twenties. 

About Jett Foundation
Since 2001, Jett Foundation, located in Plymouth, Mass., has worked to find treatments and a cure for Duchenne muscular dystrophy while improving and enriching the lives of those impacted. Jett Foundation is a registered charity with 501(c)(3) status from the IRS; all donations are tax deductible. www.jettfoundation.org

Media Contact for Jett Foundation
Gabriella Diniz, gabriella@jettfoundation.org

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