Jett Foundation recently assisted a family from Bloomington, Indiana with an accessible van conversion through its financial assistance program, Jett Giving Fund.
Noah Toms, a 13-year-old living with Duchenne, and his family, raised half the funds needed for their $28,265 van conversion through their First Giving Page and through the generosity of the Muscular Dystrophy Family Foundation. Jett Foundation matched the remaining 50 percent to convert the van for the family.
The Toms family celebrated the accessible modification of their van with Jett Foundation and the Muscular Dystrophy Family Foundation on Monday, August 19, 2019 at their home. Staff from both Jett Foundation and the Muscular Dystrophy Family Foundation were present to share in the joy of the Toms Family’s newfound mobility.
“We are most looking forward to just being able to get out of the house more and having the ability to spend time together as a family. It will give us more independence,” said Shonda Toms, Noah’s mom. “I was not able to take Noah anywhere by myself; my husband would always have to come home and help me transfer him into our vehicle for appointments. Noah's disease has helped us to see what really matters in life and to appreciate what we have.”
Health insurance often won’t cover all specialized medical and accessibility equipment such as scooters, shower chairs, ramps, rotational medical beds, platform lifts, and accessible vans; items needed when suffering from a progressive muscle-wasting disorder. Without this equipment, those with Duchenne struggle to participate in the kinds of activities that most people take for granted, such as going to and from doctor’s appointments, navigating the hallways at school, and going to the mall with friends.
Launched in 2017, the fund has helped transform the lives of countless families across the country. To learn more about Jett Giving Fund or to become a donor or sponsor, please visit: https://www.jettfoundation.org/jett-giving-fund/.