Durst Family

Fundraising for an Accessible Vehicle

Michael (15) and Harry (17) Durst are brothers from Exton, PA, living with Duchenne muscular dystrophy, a progressive neuromuscular disorder that causes a loss of motor, pulmonary, and cardiac function. They are cared for by their parents, Jonathan and Carol, have two step-siblings, Kim and Kyle, and a step-nephew, Aiden.

The Durst Family struggles to attend school and medical appointments due to a lack of safe and accessible transportation. Power chairs cannot travel with the family in their current vehicle, so they break down manual wheelchairs when leaving the house. “It is really hard and dangerous for us to lift them into our vehicle,” says Jonathon. “One of us is bound to hurt ourselves. Since we can’t bring a power chair, we can’t do the things that we need to do for the boys.”

As participants in Jett Foundation’s Accessible Vehicle Fund branch of the Jett Giving Fund, the Durst Family will aim to raise half the funds needed or more for their accessible vehicle before Jett Foundation steps in to cover the remaining costs and purchase the vehicle outright. Jonathan shares, “Being able to do more family functions and safely get them out of the house would mean the world to us. We want to let them be kids and can’t without an accessible van.”

When they are not in school, Michael and Harry enjoy fishing, amusement parks, learning about cars, and playing video games. Receiving an accessible van will mean the family can safely explore together once again.

Help Michael and Harry attain freedom and independence! Please consider donating to the family’s Jett Giving Fund fundraiser today.

All donations to Jett Foundation are tax-deductible to the extent allowed under applicable law and is an unrestricted contribution to the Jett Giving Fund. The family is working to raise half the funds needed for their van or more; when they reach their goal, Jett Foundation will cover the remaining costs and coordinate purchase and delivery of the vehicle. Please note that your contribution will be combined with other Jett Giving Fund donations to ensure that each of the children in the Jett Giving Fund initiative benefit from your generosity.

About Jett Giving Fund’s Accessible Vehicle Fund

Jett Giving Fund is Jett Foundation’s financial assistance program for families impacted by Duchenne muscular dystrophy who are in need of accessible vehicles or emergency support. As part of the Accessible Vehicle Fund, families fundraise half the funds needed or more for an accessible vehicle, and Jett Foundation covers the remaining costs once they reach their goal. 

If other resources have already been used to meet a specific need, if there is no longer a specific need, and/or if donations have been received in excess of a specific need, donations made in furtherance of a specific need will be applied for general purposes of the Jett Giving Fund. If the Jett Giving Fund no longer exists, all donations will be applied to further the general charitable mission of Jett Foundation.

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open