Fundraising for a new van
Matthew was born with Congenital Diaphragmatic Hernia, and we were told that he would not make it, but he defied all odds and survived major repair surgery. During his toddlerhood, Matthew had delays in his development, when he began walking he developed a gait and was diagnosed with Autism at age 3.
In preschool, his teacher pointed out that he hardly ran and had difficulty climbing, which lead us to schedule an appointment with an orthopedic doctor who diagnosed him with Hypotonia and suggested he go to physical therapy.
In 2012, Matthew began struggling to walk more, began falling often, struggled standing for long periods of time, and would ask to be carried during long walks. We scheduled an appointment with a neurologist in 2014 who referred us to a muscle specialist, which confirmed a diagnosis of Duchenne in 2015.
Matthew relies on us for everything and is confined to a wheelchair. Since we have no way of transporting his power chair, he has to leave it at school, we can only take it home for long breaks which requires me to physically sit in it and drive it home. When we go out in the community we have to use his manual chair. With an accessible van, we will have a safer transfer into the car and he would be able to have his power chair all the time. It would also make it easier to travel as a family.
Thank you for your consideration!