Empowering families as we fight together to realize a world without Duchenne.
Our mission at Jett Foundation is to extend and enrich the lives of individuals affected by Duchenne muscular dystrophy and other neuromuscular disorders.
We fulfill this mission by partnering with individuals and families through empowering educational programming, transformational direct service experiences, and by accelerating development of life-changing treatments.
We believe that individuals and families impacted by Duchenne have the power to be their own best advocates. We’re here to help you get there.
Our work is not possible without the support of our greater Duchenne community. We are in this together and can only tackle the challenges we face when united.
We are here because family means everything to us. However you come to Jett Foundation, whether looking for assistance, attending an event, or offering your resources, you become part of our family.
Persistence and resolve are what got us here. We will not stop until each family we meet gets the support they need and the strength they need to fight Duchenne with us.
We conduct our work honestly, transparently, and ethically. We hold ourselves to the highest of standards so that we can focus on those we serve.
Our leading-edge and grassroots approach to advocacy and serving the patient community helps us correspond with all stakeholders in the Duchenne community, including regulators, federal and state governments, academics and Duchenne clinicians, pharmaceutical companies, state medicaid programs, and move swiftly in response to needs and changing landscapes. While our advocacy efforts were critical to the approval of the first FDA approved therapy for the treatment of Duchenne, Exondys 51, we stand ready to work and advocate for the remaining 87 percent of the population not amenable to this treatment, and continue to promote the inclusion of the patient perspective in every stage of drug development.
We aim to reach every patient and family in the Duchenne community, and invite you to engage with us as we realize a world without Duchenne.