Blog Tag: Awareness Days

March 7, 2024
Individuals from the Duchenne and rare disease community shared on obtaining their license, experiencing great thrills, starting careers, and more.
September 14, 2023
Panel discussions, accessible and adaptation demonstrations, a luminaria ceremony, and more!
March 6, 2023
Jett Foundation’s Thriving with Duchenne Rare Disease Day event focused on anxiety and mental health
September 14, 2022
On September 7, 2022, Jett Foundation hosted its seventh annual World Duchenne Awareness Day (WDAD) celebration to recognize those in the Duchenne community.
March 3, 2022
On February 28, 2022, Jett Foundation hosted a virtual event to celebrate Rare Disease Day 2022. This was Jett Foundation’s 5th annual Rare Disease Day, which welcomed speakers from the Duchenne and rare disease communities in a panel discussion themed “Thriving with Duchenne.”
September 21, 2021
For the past several years, Jett Foundation has hosted an annual World Duchenne Awareness Day (WDAD) event of celebration and remembrance in the Boston area, the epicenter for rare disease research. Once again we were able to take the opportunity to broaden our celebration beyond our traditional Boston area event and engage with our families and partners all across the country virtually.

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

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