Blog Tag: Awareness Days

Individuals from the Duchenne and rare disease community shared on obtaining their license, experiencing great thrills, starting careers, and more.

Panel discussions, accessible and adaptation demonstrations, a luminaria ceremony, and more!

Jett Foundation’s Thriving with Duchenne Rare Disease Day event focused on anxiety and mental health

On September 7, 2022, Jett Foundation hosted its seventh annual World Duchenne Awareness Day (WDAD) celebration to recognize those in the Duchenne community.

On February 28, 2022, Jett Foundation hosted a virtual event to celebrate Rare Disease Day 2022. This was Jett Foundation’s 5th annual Rare Disease Day, which welcomed speakers from the Duchenne and rare disease communities in a panel discussion themed “Thriving with Duchenne.”

For the past several years, Jett Foundation has hosted an annual World Duchenne Awareness Day (WDAD) event of celebration and remembrance in the Boston area, the epicenter for rare disease research. Once again we were able to take the opportunity to broaden our celebration beyond our traditional Boston area event and engage with our families and partners all across the country virtually.