Welcome Packet
Been diagnosed or want to learn more?
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
Read Now
Female Carriers
Resources, Care, and Programs
Community Ambassadors
Meet our Community Ambassadors
Clinical Trials
A quick look at investigational drug studies
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
Get Started
Host a Webinar
Learn about our community webinar series.
View Upcoming Webinars
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Request a Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
About Female Carriers
Facts and information about female carriers.
Learn More
Resources for Carriers
Tools and materials for female carriers.
Read More
Connect with our Specialist
Get support and help navigating your journey.
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
General Resources
Check out helpful tools and transition resources.
Find Resources
Transition Resources
GotTransition resources and tools.
Learn More
Camp Promise
Locations and information on how to apply.
Learn More
Community Webinars
Watch past recordings on care and resource topics.
Watch Now
Our mission at Jett Foundation is to empower people and families impacted by Duchenne muscular dystrophy.
We fulfill this mission through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
Dan is an upbeat kid who loves to have a blast. And, like some young boys around the world, he has Duchenne muscular dystrophy. In this beautifully illustrated and thoughtfully worded children’s book, Dan introduces children to Duchenne by sharing a look into his life and his feelings.
When a child is diagnosed with Duchenne, it can be a scary and overwhelming time for parents and guardians. On top of it all, they must also worry about explaining to their young child exactly what Duchenne is and how it will impact them.
While telling a child about a rare disease is never easy, we hope that our free resource, Dan and DMD, will help parents and guardians as they prepare to talk to their children about Duchenne.
Not only is Dan and DMD a great resource for families, but it is also helpful for their friends and peers. Schools, communities, churches, and doctors’ offices are among the many places where Dan and DMD can make an impact by spreading knowledge and awareness about Duchenne.
Author Joseph Yasmeh and illustrator Liora Yasmeh are siblings and aspiring doctors. They were inspired to write Dan and DMD by a UCLA course led by Rachelle Crosbie-Watson, Ph.D., Professor of Integrative Biology and Physiology. The book was made possible by the guidance of Dr. Crosbie-Watson and members of The Center for Duchenne Muscular Dystrophy at UCLA.
Join one of our special guest readers while following along with your book at home.
Elijah Stacy is a young man from Riverside in southern California who loves sports, reading, philosophy, studying stocks, and hanging out with his friends. Elijah is also a 20-year-old young man who lives with Duchenne muscular dystrophy, with a mission to minimize human suffering and propel human prosperity fueling his ambition to cure his disease. Elijah has a little brother named Ky, 14-years-old, who also is impacted by Duchenne and another brother Max, who passed away from the disorder
Check out some resources for teachers and healthcare providers below.
Check out “The Red Balloon,” a teacher’s guide to introducing Duchenne muscular dystrophy and reading Dan and DMD in the classroom!
Interested in receiving materials like Dan and DMD for those you care for?
Please visit our For Healthcare Providers page to request resources.
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | [email protected]
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Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.