Our mission at Jett Foundation is to empower people and families impacted by Duchenne muscular dystrophy.
We fulfill this mission through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
Dan is an upbeat kid who loves to have a blast. And, like some young boys around the world, he has Duchenne muscular dystrophy. In this beautifully illustrated and thoughtfully worded children’s book, Dan introduces children to Duchenne by sharing a look into his life and his feelings.
When a child is diagnosed with Duchenne, it can be a scary and overwhelming time for parents and guardians. On top of it all, they must also worry about explaining to their young child exactly what Duchenne is and how it will impact them.
While telling a child about a rare disease is never easy, we hope that our free resource, Dan and DMD, will help parents and guardians as they prepare to talk to their children about Duchenne.
Not only is Dan and DMD a great resource for families, but it is also helpful for their friends and peers. Schools, communities, churches, and doctors’ offices are among the many places where Dan and DMD can make an impact by spreading knowledge and awareness about Duchenne.
Author Joseph Yasmeh and illustrator Liora Yasmeh are siblings and aspiring doctors. They were inspired to write Dan and DMD by a UCLA course led by Rachelle Crosbie-Watson, Ph.D., Professor of Integrative Biology and Physiology. The book was made possible by the guidance of Dr. Crosbie-Watson and members of The Center for Duchenne Muscular Dystrophy at UCLA.
Elijah Stacy is a young man from Riverside in southern California who loves sports, reading, philosophy, studying stocks, and hanging out with his friends. Elijah is also a 20-year-old young man who lives with Duchenne muscular dystrophy, with a mission to minimize human suffering and propel human prosperity fueling his ambition to cure his disease. Elijah has a little brother named Ky, 14-years-old, who also is impacted by Duchenne and another brother Max, who passed away from the disorder
Check out some resources for teachers and healthcare providers below.