Family Support Groups

Jett Foundation continues to promote and assist family support groups to help build stronger support systems, relationships, education, and connections across the Duchenne community. Visit one of our Family Support Group events to obtain resources and learn more from others in the Duchenne community!

Porch Nite

Porch Nite is a safe space to land; where you don’t have to explain yourself, questions are always welcome, and understanding comes naturally. Porch Nite sessions are a chance to learn from one another, share stories, laugh, cry, and grow while finding joy in the journey.

Whether you come to listen quietly or open up and connect, you are always welcome.

Held virtually throughout the year and occasionally at in-person retreat weekends, Porch Nite continues to support moms and caregivers with challenges like grief support, diagnosis information, relationship building, or simply providing an ear to listen. New in 2025, some of our virtual sessions are open to all caregivers!

Carrier Conversations

Carrier Conversations is Jett Foundation’s monthly virtual support group for women in the Duchenne community who are carriers of Duchenne muscular dystrophy (whether they are manifesting or not).

This group is a safe space for carriers to connect and chat with each other. It is an informal, intimate setting that ensures women feel comfortable and empowered in organic conversations that arise, which may include but are not limited to: care, being a caregiver, self-care, medical issues, guilt, and more.

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Book of Knowledge

During our Book of Knowledge Porch Nite session, parents can expect to compile important information regarding your child’s medical condition and contact information in one safe space – your Book of Knowledge – for reference in case of an emergency.

Request a template below to receive this great tool for families who have children with special health care needs. Using this Book of Knowledge will help keep track of any important information involved in you or your child’s healthcare journey.

View a Past Book of Knowledge Session Recording