For Families

We empower patients and families with the knowledge needed to be their own best advocates, spread awareness about Duchenne in the medical field, and help accelerate research and development.

Ways To Get Involved

Workshops & Webinars

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year. 

Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.

Community Ambassadors

These ambassadors are Jett Foundation’s extra ears, eyes, and voices in the Duchenne community. They are advocates, educational resources, and pillars of emotional support.

Support Groups

Jett Foundation continues to promote and assist family support groups such as Porch Nite to help build stronger support systems, relationships, education, and connections across the Duchenne community. 

Ways To Learn

Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.

Community Webinars

Our Community Webinar Series is focused on ensuring that our Duchenne community is “better prepared” for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.

Educational Packages

Jett Foundation has established one-of-a-kind direct service programs and educational activities that have a proven track record of influence and meets the needs of affected families from every city and town, regardless of location, financial situation, or capabilities.

Welcome Packages

Jett Foundation knows and understands that getting a diagnosis like Duchenne is far from easy. We have worked tirelessly to create a package for families on this journey–through its highs and lows.

Welcome Packet

We invite all in the community to request our Welcome Package, whether a newly diagnosed family, clinician, industry partner, family member, or friend.

Below are some of the few things that you can expect to receive:

  • Jett Foundation Welcome Letter
    and Brochure
  • Support Letters from Community Ambassadors
  • List of Duchenne Certified Centers
  • Health Insurance Flight Plan