In 2001, Christine and Stephen McSherry started Jett Foundation after learning the devastating news that their then five-year-old son, Jett, had Duchenne muscular dystrophy.
The McSherry family was determined to save Jett and thousands of boys like him by establishing a foundation dedicated to funding DMD research that will ultimately cure this deadly disease.
Since then, Jett Foundation’s efforts have raised over $16 million dollars for promising biomedical Duchenne research and shifted its primary focus to direct service programming for families impacted by Duchenne and other neuromuscular disorders. Jett Foundation has established one-of-a-kind direct service programs and educational activities that have a proven track record of influence and meets the needs of affected families from every city and town, regardless of location, financial situation, or capabilities.
Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
Eric Snyder, Executive Director
We believe that individuals and families impacted by Duchenne have the power to be their own best advocates. We’re here to help you get there.
Our work is not possible without the support of our greater Duchenne community. We are in this together and can only tackle the challenges we face when united.
We are here because family means everything to us. However you come to Jett Foundation, whether looking for assistance, attending an event, or offering your resources, you become part of our family.
Persistence and resolve are what got us here. We will not stop until each family we meet gets the support they need and the strength they need to fight Duchenne with us.
We conduct our work honestly, transparently, and ethically. We hold ourselves to the highest of standards so that we can focus on those we serve.
Through our partners’ generosity and the enthusiasm and commitment of their staff, we’re able to reach more people and families living with Duchenne muscular dystrophy across the USA.