About Us

In 2001, Christine and Stephen McSherry started Jett Foundation after learning the devastating news that their then five-year-old son, Jett, had Duchenne muscular dystrophy.

The McSherry family was determined to save Jett and thousands of boys like him by establishing a foundation dedicated to funding DMD research that will ultimately cure this deadly disease.

Since then, Jett Foundation’s efforts have raised over $16 million dollars for promising biomedical Duchenne research and shifted its primary focus to direct service programming for families impacted by Duchenne and other neuromuscular disorders. Jett Foundation has established one-of-a-kind direct service programs and educational activities that have a proven track record of influence and meets the needs of affected families from every city and town, regardless of location, financial situation, or capabilities.

Mission

Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.

Eric Snyder, Executive Director

Our Values

Empowerment

We believe that individuals and families impacted by Duchenne have the power to be their own best advocates. We’re here to help you get there.

Community

Our work is not possible without the support of our greater Duchenne community. We are in this together and can only tackle the challenges we face when united.

Family

We are here because family means everything to us. However you come to Jett Foundation, whether looking for assistance, attending an event, or offering your resources, you become part of our family.

Tenacity

Persistence and resolve are what got us here. We will not stop until each family we meet gets the support they need and the strength they need to fight Duchenne with us.

Integrity

We conduct our work honestly, transparently, and ethically. We hold ourselves to the highest of standards so that we can focus on those we serve.

Meet the Team

Get to know our Jett Foundation staff!

Our Partners

Through our partners’ generosity and the enthusiasm and commitment of their staff, we’re able to reach more people and families living with Duchenne muscular dystrophy across the USA.

View All Partners

Latest Impact Report

Recent Blog Posts

July 10, 2024
Jett Foundation is grateful for our athletes who swam, biked, ran, and cheered loudly for the Duchenne community.
July 10, 2024
Jessica will connect with individuals and families in the Duchenne community on behalf of Jett Foundation, providing them with resources, support, and more throughout their journey.
July 8, 2024
Josvin and his family are relieved to have reliable transportation for medical appointments.

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open