Jett Foundation

Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.

Family

Everyday, we strive to provide our community with helpful resources, interactive programs, and tools to use on a Duchenne journey.

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Donate

Thanks to the unwavering support of community members like you, Jett Foundation has been able to continue serving our Duchenne muscular dystrophy community in creative and safe for many years.

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Volunteer

Make a difference in the lives of those living with Duchenne and become one of the many who selflessly give their time and talent to support our mission.

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Become a Partner

Our team at Jett Foundation will work with you and your company to customize a partnership. Let us explore with you how, together, we can serve a community full of unmet needs.

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Featured Programs

Jett Giving Fund

Jett Giving Fund offers families assistance through two main branches of support: the Accessible Vehicle Fund helps families obtain safe, accessible transportation; the Emergency Fund provides grants to families facing unexpected, emergency situations.

Camp Promise

Camp Promise is a free, week-long camp and year-round program for kids, teens, and adults with neuromuscular disorders.

Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.

Support Groups

Our support program focuses on building stronger support systems for families affected by Duchenne in their local community through story-telling, education, and grief-management.

Upcoming Events

Event Date: June 5, 2023

Porch Nite: Coping with Anger

Join fellow moms at Porch Nite to discuss how to manage, handle, and cope with anger while impacted by Duchenne

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Event Date: June 8, 2023

Transition of Care in Duchenne

Jett Foundation’s Community Webinar Series featuring a presentation on transition of care in Duchenne

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Event Date: June 8, 2023

Camp Promise Tours: Koala Discovery Walk in Australia

Join the camp team on this virtual trip to Australia to discover all things koala bear related!

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Duchenne News

May 24, 2023

Sarepta Therapeutics Announces Update on Regulatory Review of SRP-9001

Sarepta shares an update on the regulatory review of SRP-9001, a treatment of ambulant individuals with Duchenne muscular dystrophy who have a confirmed mutation of the DMD gene.

May 23, 2023

Antisense Receives Approval to Conduct Phase IIb Trial of ATL1102 and Appoints New CEO

Antisense announces approval to conduct phase 2b trial of ATL1102 and appoints CEO Dr. James Garner

May 19, 2023

PepGen Announces Clearance by Health Canada of CTA for PGN-EDO51 to Begin the Phase 2 Clinical Trial, CONNECT1-EDO51, for the Treatment of Duchenne

PepGen announces clearance by Health Canada of CTA for PGN-EDO51 to begin the Phase 2 Clinical Trial, CONNECT1-EDO51

Recent Blog Posts

June 1, 2023

Jett Foundation Sponsored Study Identifies Evolving Treatment Goals for Patients and Families Impacted by Duchenne Muscular Dystrophy

May 31, 2023

Emily Hubert Joins Jett Foundation as Development Events Manager

Jett Foundation welcomes Emily Hubert as Development Events Manager

May 30, 2023

Me, My Van, and Duchenne: A Guest Blog by Declan Hickey

A guest blog from Declan Hickey, an 18-year-old with Duchenne muscular dystrophy and previous participant in Jett Foundation’s Jett Giving Fund

Donate Today

Help us fulfill our mission by donating to help us partner with individuals and families through empowering educational programming, transformational direct service experiences, and by accelerating development of life-changing treatments.