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Jett Foundation

Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.

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Family

Everyday, we strive to provide our community with helpful resources, interactive programs, and tools to use on a Duchenne journey.

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Thanks to the unwavering support of community members like you, Jett Foundation has been able to continue serving our Duchenne muscular dystrophy community in creative and safe for many years.

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Volunteer

Make a difference in the lives of those living with Duchenne and become one of the many who selflessly give their time and talent to support our mission.

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Become a Partner

Our team at Jett Foundation will work with you and your company to customize a partnership. Let us explore with you how, together, we can serve a community full of unmet needs.

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Featured Programs

Jett Giving Fund

Jett Giving Fund offers families assistance through two main branches of support: the Accessible Vehicle Fund helps families obtain safe, accessible transportation; the Emergency Fund provides grants to families facing unexpected, emergency situations.

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Camp Promise

Camp Promise is a free, week-long camp and year-round program for kids, teens, and adults with neuromuscular disorders.

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Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.
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Support Groups

Our support program focuses on building stronger support systems for families affected by Duchenne in their local community through story-telling, education, and grief-management.

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Upcoming Events

Event Date: November 21, 2024

Community Webinar: Solid Biosciences’ INSPIRE DUCHENNE Update and Study Expansion

Solid will provide an update on INSPIRE DUCHENNE, clinical trial for SGT-003, a next-generation microdystrophin gene therapy for individuals living with Duchenne muscular dystrophy.
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Event Date: November 21, 2024

Camp Promise Family Feud

Get those buzzers ready… Camp Promise is hosting a friendly Family Feud battle!
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Event Date: December 5, 2024

Community Webinar: Wave Life Sciences Interim Results from FORWARD-53 Study of WVE-N531

Wave will provide an overview of initial clinical trial results for WVE-N531 in individuals with Duchenne muscular dystrophy who are amenable to exon 53 skipping, as well as an overview of the potentially registrational FORWARD-53 study.
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Duchenne News

November 19, 2024

REGENXBIO Letter to the Duchenne Community – 11/19/2024

Updates on RGX-202, REGENXBIO’s investigational gene therapy for the treatment of Duchenne muscular dystrophy.
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November 19, 2024

REGENXBIO Initiates Pivotal Phase of Affinity Duchenne Trial of RGX-202 Gene Therapy and Reports Positive Functional Data

Updates on dosing and more for REGENXBIO’s open-label trial of RGX-202 for Duchenne muscular dystrophy.
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November 7, 2024

REGENXBIO Reports Third Quarter 2024 Financial Results and Recent Operational Updates

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Recent Blog Posts

November 18, 2024

From KPAX Missoula: New van brings new hope to Missoula family

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November 12, 2024

Accessible Vehicle Fund Brings Safety, Accessibility, and Smiles to Georgia Family

Matthew Busch and his family are relieved to have reliable transportation for family outings and necessary medical appointments.
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November 7, 2024

Smiles and Stargazing at Camp Promise in Southern California

An abundance of magic at the first ever Camp Promise – SoCal.
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Donate Today

Help us fulfill our mission by donating to help us partner with individuals and families through empowering educational programming, transformational direct service experiences, and by accelerating development of life-changing treatments.
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Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | [email protected]

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Jett Foundation, Inc. is a 501(c)3 registered tax-exempt nonprofit organization. Our Federal Tax ID is 04-3563445.

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Experience the magic this summer!

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How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

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Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

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Accessible Vehicle Fund Applications Open

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