Community Webinars

Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages while on a Duchenne journey.

Community Webinar Series Logo

Upcoming Webinars

June 8, 2023 1:00pm
Jett Foundation’s Community Webinar Series featuring a presentation on transition of care in Duchenne
July 13, 2023 1:00pm
Jett Foundation’s Community Webinar Series featuring a presentation on how to navigate special needs trusts.
Females with Dystrophinopathy - Management of Care and Access to Care Graphic
August 10, 2023 1:00pm
Jett Foundation’s Community Webinar Series with a presentation around management to care and access to care for females with dystrophinopathy

Webinar Recordings

Jett Foundation's Community Webinar Series featuring a presentation from All Wheels Up on air travel with Duchenne
A Community Webinar hosted by Jett Foundation and Jill Castle on myths around IEPs and 504 plans.

VILTEPSO: An FDA-Approved Duchenne Treatment for Patients Amenable to Exon 53 Skipping

Jett Foundation's Community Webinar Series with a presentation from NS Pharma on VILTEPSO, an FDA-approved Duchenne treatment
Jett Foundation's Community Webinar Series featuring a presentation on support for siblings of individuals with Duchenne
Community Webinar on Transforming the Treatment Paradigm for Duchenne, Presented by Dyne Therapeutics
Tips & helpful information about Jett Foundation's Accessible Vehicle Fund application process
When: November 29, 2022 1:00PM Join Jett Foundation’s Community Webinar Series on November 29 at 1PM EST as Sarepta Therapeutics presents on caregiver wellness and...
Community Webinar with Edgewise Therapeutics on their novel approach to protect muscle in Duchenne and Becker
Community Webinar Series: John Howell, discussion on what to consider before getting behind the wheel.
Dyne Therapeutics provides an overview on their Phase 1/2 clinical trial, DELIVER
Community Webinar Series featuring PepGen to discuss enhanced delivery of oligonucleotides in Duchenne muscular dystrophy
Join Jett Foundation's Community Webinar Series on July 20 as we welcome Annie Tulkin for a presentation and discussion on all things higher education.

Don’t see a webinar you’re looking for? Explore all of our Community Webinar recordings on the Jett YouTube channel!

Sponsors

Thank you to our generous sponsors for making the Community Webinar Series possible!

Partnership & Media Guide

Are you one of our webinar partners? Please email maura@jettfoundation.org for our Webinar Partnership Guide which contains Jett Foundation logos, messaging, and more.

Experience the magic of camp promise

Complete applications due April 3, 2023.