Community Webinars

Our Community Webinar Series is focused on ensuring that our Duchenne and rare disease community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages while on a Duchenne journey.

Upcoming Webinars

October 8, 2024 5:00pm

Navigating the Accessible Vehicle Fund Application Process

Hear from the Jett team on the ins and outs of the Accessible Vehicle Fund application process

October 25, 2024 1:00pm

Community Webinar: Behaviors in Carriers

Tune in to hear from Dr. Natalie Truba of Nationwide Children’s on behaviors in carriers of Duchenne muscular dystrophy.

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Webinar Recordings

Dyne Therapeutics: Updates on DELIVER Trial

Dyne Therapeutics Announces New Clinical Data from DELIVER Trial of DYNE-251 in DMD Demonstrating Impact on Key Disease Biomarkers and Improvement in Multiple Functional Endpoints....

Community Webinar: Debunking Tracheostomy Myths

Tune in to hear from Jonathon Truwit and DJ Kimble on myths around tracheostomies.

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Community Webinar: Regional Palliative Care in the South

Tune in to hear from Rikki Hooper on palliative care for Duchenne muscular dystrophy in South Eastern United States.

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Community Webinar: Weekend Steroid Dosing

Tune in to hear from Dr. Aravindhan Veerapandiyan on weekend steroid dosing for Duchenne muscular dystrophy.

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Community Webinar: Cardiac Imaging, Treatment, and Therapy in Duchenne, Becker, and Carriers

Tune in to hear from Jonathon Soslow on cardiac imaging, treatment, and therapy for individuals living with DMD, BMD, or are carriers.

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Community Webinar: ITF Therapeutics DUVYZAT™ (givinostat)

Tune in to hear from Dr. Scott Baver on an introduction to ITF Therapeutics' DUVYZAT™ (givinostat) for Duchenne muscular dystrophy.

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Palliative Care Webinar

Jett's Community Webinar Series featuring a presentation from Dr. Ashley Nichols of Palliative & Supportive Care teams at Children's of Alabama and UAB.

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Community Webinar: Overview of Ronald McDonald House Charities

An overview of Ronald McDonald House Charities' chapters, programs, and more.

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Community Webinar: FDA Approved Agamree and Catalyst Pathways

Tune in to hear from the team at Catalyst Pharmaceuticals on an overview of FDA approved Agamree & Catalyst Pathways.

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Community Webinar: Management and Access to Care for Female Carriers of Duchenne

Tune in to hear from Larry Wayne Markham on the management and access to care for female carriers of Duchenne muscular dystrophy.

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Community Webinar: PJ’s Protocol Panel

Jett's Community webinar Series featuring a panel discussion on PJ Nicholoff's Steroid Protocol.

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Community Webinar: Rhabdomyolysis in Duchenne

A presentation and discussion from Dr. Carla Zingariello of the University of Florida on Rhabdomyolysis in Duchenne muscular dystrophy.

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Don’t see a webinar you’re looking for? Explore all of our Community Webinar recordings on the Jett YouTube channel!

Partnership & Media Guide

Are you one of our webinar partners? Please email [email protected] for our Webinar Partnership Guide which contains Jett Foundation logos, messaging, and more.

Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | [email protected]