Community Webinars

Our Community Webinar Series is focused on ensuring that our Duchenne and rare disease community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages while on a Duchenne journey.

Upcoming Webinars

May 30, 2024 1:00pm
An overview of Ronald McDonald House Charities’ chapters, programs, and more.
June 13, 2024 1:00pm
Jett’s Community Webinar Series featuring a presentation from Dr. Ashley Nichols of Palliative & Supportive Care teams at Children’s of Alabama and UAB.

Webinar Recordings

Tune in to hear from the team at Catalyst Pharmaceuticals on an overview of FDA approved Agamree & Catalyst Pathways.
Tune in to hear from Larry Wayne Markham on the management and access to care for female carriers of Duchenne muscular dystrophy.
Jett's Community webinar Series featuring a panel discussion on PJ Nicholoff's Steroid Protocol.
A presentation and discussion from Dr. Carla Zingariello of the University of Florida on Rhabdomyolysis in Duchenne muscular dystrophy.
Information on PTC Therapeutics' EMFLAZA landscape for 2024 during a presentation and Q&A.
Jett's Community Webinar Series hosts Dyne Therapeutics for a presentation on FORCE, Dyne's Duchenne clinical trial program.
Jett Foundation's Community Webinar Series featuring a presentation from Delia De Mello on social security and disability benefits.
Jett Foundation's Community Webinar Series presents: School Accessibility and Participation in Duchenne
The founder and creator of "Perfect Lift" joins our Community Webinar Series to discuss product details and use.
Hear from the Jett team on the ins and outs of the Accessible Vehicle Fund application process
Jett Foundation's Community Webinar Series with a presentation and discussion on advocating for yourself during the transition process with Duchenne.
Jett Foundation's Community Webinar Series featuring a presentation on how to plan for travel with a disability

Don’t see a webinar you’re looking for? Explore all of our Community Webinar recordings on the Jett YouTube channel!

Sponsors

Thank you to our generous sponsors for making the Community Webinar Series possible!

Partnership & Media Guide

Are you one of our webinar partners? Please email maura@jettfoundation.org for our Webinar Partnership Guide which contains Jett Foundation logos, messaging, and more.

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open