Featured Programs

To help keep our community connected, Jett Foundation is providing programming and events both in-person and virtually. Our goal is to provide convenient access to Duchenne-related educational opportunities, spaces for connection with friends (old and new), chances to build support systems, and ways to encourage one another at all times.

two children looking at a Macbook

Independence & Empowerment

Jett Giving Fund

The Jett Giving Fund currently offers families financial assistance through two main branches of support: the Accessible Vehicle Fund and the Emergency Fund.

Camp Promise

Camp Promise is a free, week-long camp and year-round programs for kids, teens, and adults with neuromuscular disorders.

Community & Education

Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.

Community Webinars

Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.

Welcome Packages

Through our educational programming initiatives, we empower those in the Duchenne community with the knowledge needed to be their own best advocates, spread awareness about Duchenne in the medical field, and help accelerate research and development.

Dan and DMD Book

In this beautifully illustrated and thoughtfully worded children’s book, Dan introduces children to Duchenne by sharing a look into his life and feelings.

Advocacy & Research

Awareness Days

For the past 5 years, Jett Foundation has hosted annual events of celebration and remembrance in the Boston area, the epicenter for rare disease research, as well as in a virtual environment.

JettRide

JettRide is a multi-state cycling tour for teens to spread awareness, unite families, and inspire siblings to fight Duchenne Muscular Dystrophy.

Sponsorship Opportunities

Thanks to the unwavering support of community members like you, Jett Foundation has been able to continue serving our Duchenne muscular dystrophy community in creative and safe ways during the COVID-19 pandemic.