To help keep our community connected, Jett Foundation is providing programming and events both in-person and virtually. Our goal is to provide convenient access to Duchenne-related educational opportunities, spaces for connection with friends (old and new), chances to build support systems, and ways to encourage one another at all times.
The Jett Giving Fund currently offers families financial assistance through two main branches of support: the Accessible Vehicle Fund and the Emergency Fund.
Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
Through our educational programming initiatives, we empower those in the Duchenne community with the knowledge needed to be their own best advocates, spread awareness about Duchenne in the medical field, and help accelerate research and development.
Our ambassadors are Jett Foundation’s ears, eyes, and voices in the Duchenne community. They are advocates, educational resources, and pillars of emotional support.
For the past 5 years, Jett Foundation has hosted annual events of celebration and remembrance in the Boston area, the epicenter for rare disease research, as well as in a virtual environment.