Rare Disease Day

February 29, 2024

We will be recognizing Rare Disease Day with a panel discussion highlighting members of our community who are living life to the fullest, fulfilling their dreams, and conquering goals.

We are excited to welcome back Kyle Bryant and Sean Baumstark from the Two Disabled Dudes podcast to facilitate our conversation on February 29, 2024. We hope you will join to learn from others about their rare disease experiences and more.

Event Details

Social Media Toolkit

Thank you for supporting Jett Foundation on Rare Disease Day! These tools and resources will help you spread the word in your local community about Rare Disease Day, Duchenne, and Jett Foundation. Below we have included shareable graphics and facts about rare diseases and Duchenne.

Our 2023 Sponsors

Thriving with Duchenne 2023 Recording

Take a look at this year’s Rare Disease Day Discussion with Jett Foundation!

Blog Posts

Jett Foundation Celebrates 5th Annual Rare Disease Day

On February 28, 2022, Jett Foundation hosted a virtual event to celebrate Rare Disease Day 2022. This was Jett Foundation’s 5th annual Rare Disease Day, which welcomed speakers from the Duchenne and rare disease communities in a panel discussion themed “Thriving with Duchenne.”

Read More

Recap of Our Virtual 2021 World Duchenne Awareness Day

For the past several years, Jett Foundation has hosted an annual World Duchenne Awareness Day (WDAD) event of celebration and remembrance in the Boston area, the epicenter for rare disease research. Once again we were able to take the opportunity to broaden our celebration beyond our traditional Boston area event and engage with our families and partners all across the country virtually.

Read More

Accessible Vehicle Fund Applications Open