Rare Disease Day

February 29, 2024

This year, we recognized Rare Disease Day with a panel discussion highlighting members of our community who are living life to the fullest, fulfilling their dreams, and conquering goals.

Thriving with Duchenne 2024 Recording

Event Details

Social Media Toolkit

Thank you for supporting Jett Foundation on Rare Disease Day! These tools and resources will help you spread the word in your local community about Rare Disease Day, Duchenne, and Jett Foundation. Below we have included shareable graphics and facts about rare diseases and Duchenne.

Our 2024 Sponsors

Blog Posts

Jett Foundation Celebrates 5th Annual Rare Disease Day

On February 28, 2022, Jett Foundation hosted a virtual event to celebrate Rare Disease Day 2022. This was Jett Foundation’s 5th annual Rare Disease Day, which welcomed speakers from the Duchenne and rare disease communities in a panel discussion themed “Thriving with Duchenne.”

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Recap of Our Virtual 2021 World Duchenne Awareness Day

For the past several years, Jett Foundation has hosted an annual World Duchenne Awareness Day (WDAD) event of celebration and remembrance in the Boston area, the epicenter for rare disease research. Once again we were able to take the opportunity to broaden our celebration beyond our traditional Boston area event and engage with our families and partners all across the country virtually.

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Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

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