Rare Disease Day

Celebrating Rare Disease Day with Jett Foundation

This year, Jett Foundation celebrated it’s 5th annual Rare Disease Day with a panel of speakers sharing personal experiences about how they are thriving with Duchenne. Our speakers brought their unique stories to the table while sharing real-life scenarios, situations, and perspectives.

2022 Information

Thriving with Duchenne

A Rare Disease Day Discussion with Jett Foundation

Recent Blog Posts

Three Brothers From WI Receive New Van Through Accessible Vehicle Fund

Kelly Fitzpatrick says her life changed when she learned that not one, but all three of her sons have Duchenne muscular dystrophy. Connor (11), Kian (9), and Finnegan McVey (7) are three brothers from Poynette, WI, finding joy in spending each day with one another and their mother who tackles every Duchenne obstacle as a single parent.

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Our Sponsors

Thank you to our 2022 Rare Disease Day Sponsors!