Rare Disease Day

On February 28, 2023, we celebrated our 6th annual Rare Disease Day event with a presentation and panel discussion focused on anxiety and mental health in Duchenne.

Our 2023 Rare Disease Day event has concluded, but please check back soon for more details about Rare Disease Day in 2024. We hope you will also join us for our World Duchenne Awareness Day celebration this September!

Event Details

Social Media Toolkit

Thank you for supporting Jett Foundation on Rare Disease Day! These tools and resources will help you spread the word in your local community about Rare Disease Day, Duchenne, and Jett Foundation. Below we have included shareable graphics and facts about rare diseases and Duchenne.

Our 2023 Sponsors

Thriving with Duchenne 2023 Recording

Take a look at this year’s Rare Disease Day Discussion with Jett Foundation!

Blog Posts

Jett Foundation Celebrates 5th Annual Rare Disease Day

On February 28, 2022, Jett Foundation hosted a virtual event to celebrate Rare Disease Day 2022. This was Jett Foundation’s 5th annual Rare Disease Day, which welcomed speakers from the Duchenne and rare disease communities in a panel discussion themed “Thriving with Duchenne.”

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Recap of Our Virtual 2021 World Duchenne Awareness Day

For the past several years, Jett Foundation has hosted an annual World Duchenne Awareness Day (WDAD) event of celebration and remembrance in the Boston area, the epicenter for rare disease research. Once again we were able to take the opportunity to broaden our celebration beyond our traditional Boston area event and engage with our families and partners all across the country virtually.

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Experience the magic of camp promise

Complete applications due April 3, 2023.