Rare Disease Day

Thriving with Duchenne
A Rare Disease Day Event with Jett Foundation
February 28, 2023 | 1PM ET | Via Zoom

Jett Foundation will celebrate its 6th Annual Rare Disease Day on February 28 with a presentation and panel discussion focused on anxiety and mental health in Duchenne muscular dystrophy. 

Our panelists will share their experiences managing anxiety and thriving through the challenges it brings while facing a rare disease as an individual, family member, or professional. We are excited to welcome back Kyle Bryant and Sean Baumstark from the Two Disabled Dudes podcast to facilitate our conversation. 

Event Details

Thriving with Duchenne 2022 Recording

Take a look at last year’s Rare Disease Day Discussion with Jett Foundation!

Our 2023 Sponsors

Blog Posts

Jett Foundation Celebrates 5th Annual Rare Disease Day

On February 28, 2022, Jett Foundation hosted a virtual event to celebrate Rare Disease Day 2022. This was Jett Foundation’s 5th annual Rare Disease Day, which welcomed speakers from the Duchenne and rare disease communities in a panel discussion themed “Thriving with Duchenne.”

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Recap of Our Virtual 2021 World Duchenne Awareness Day

For the past several years, Jett Foundation has hosted an annual World Duchenne Awareness Day (WDAD) event of celebration and remembrance in the Boston area, the epicenter for rare disease research. Once again we were able to take the opportunity to broaden our celebration beyond our traditional Boston area event and engage with our families and partners all across the country virtually.

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Experience the magic of camp promise

Applications open for campers and volunteers!