Resource Library

Resources to extend and enrich the lives of individuals affected by Duchenne muscular dystrophy and other neuromuscular disorders.

Families

Female Carriers

Individuals

Medical Professionals

Partners

Volunteers

Health Insurance Flight Plan

A guide to navigating the insurance process in Duchenne. This booklet will teach you the basics about insurance, including claims and denials.

Clinical Trial Flight Plan

This booklet guide will walk you through the basic steps of participating in a trial, key glossary terms, where to find clinical trials, and more.

Clinical Trial Cheat Sheet

For a quick look at enrolling or soon to be enrolling investigational drug studies in Duchenne and their enrollment criteria, check out Jett Foundation's Clinical Trial Cheat Sheet.

Occupational Therapy from Cure Duchenne

Medical Professionals

CureDuchenne offers a high level program of educational opportunities and resources for occupational therapists and allied healthcare professionals who treat those with Duchenne muscular dystrophy.

Physical Therapy (for Physical Therapists)

Medical Professionals

CureDuchenne offers a high level program of educational opportunities and resources for physical therapists and allied healthcare professionals who treat those with Duchenne muscular dystrophy.

Jett Foundation: The Journey to Diagnosis and Next Steps for Female Carriers

Female Carriers

A guide sheet from Jett Foundation on how to navigate testing and diagnosis, as well as advice for the steps to follow.

Recording: Packing and Preparing for Camp

Families, Individuals

A recording of a virtual Jett Foundation and Camp Promise event, featuring a family from the Duchenne community explaining tips & tricks to be best prepared for a camp experience.

Thriving With Duchenne Episode with Two Disabled Dudes Podcast

Families, Female Carriers, Individuals, Medical Professionals

A Rare Disease Day podcast recording from the Two Disabled Dudes, Kyle Bryant and Sean Baumstark, who moderated Jett Foundation's 2024 Rare Disease Day event.

Physicians Who Treat Female Carriers of Duchenne

Female Carriers, Medical Professionals

A resource list of known physicians in the United States who treat and care for female carriers of Duchenne muscular dystrophy.

Welcome Packet

We invite all in the community to request our Welcome Packet, whether a newly diagnosed family, clinician, industry partner, family member, or friend, to learn more about Duchenne and available resources.