Resource Library

Resources to extend and enrich the lives of individuals affected by Duchenne muscular dystrophy and other neuromuscular disorders.

Audience
Audience
A guide to navigating the insurance process in Duchenne. This booklet will teach you the basics about insurance, including claims and denials.
This booklet guide will walk you through the basic steps of participating in a trial, key glossary terms, where to find clinical trials, and more.
For a quick look at enrolling or soon to be enrolling investigational drug studies in Duchenne and their enrollment criteria, check out Jett Foundation's Clinical Trial Cheat Sheet.
Gene therapy has made significant strides in Duchenne muscular dystrophy, with one therapy approved and other potential therapies in various stages of development. PPMD’s resources aim to empower and inform...
Got Transition dives deep into how to best transition young adults into adult health care.
Curious about transition of health care when clinicians aren’t being changed? Got Transition provides a package and explanations for the best approach.
Got Transition packages and tips for Internal Medicine, Family Medicine, and Med-Peds Clinicians on transitioning children and young adults to adult clinicians.
Are you ready to transition to adult health care? Take this Got Transition quiz for help on what works best for you and your timeline.
Is your child ready to transition to adult health care? Take this Got Transition quiz for guidance on your family’s transition period.

Welcome Packet

We invite all in the community to request our Welcome Packet, whether a newly diagnosed family, clinician, industry partner, family member, or friend, to learn more about Duchenne and available resources.

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

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