Resource Library

Resources to extend and enrich the lives of individuals affected by Duchenne muscular dystrophy and other neuromuscular disorders.

Audience
Audience
A guide to navigating the insurance process in Duchenne. This booklet will teach you the basics about insurance, including claims and denials.
This booklet guide will walk you through the basic steps of participating in a trial, key glossary terms, where to find clinical trials, and more.
For a quick look at enrolling or soon to be enrolling investigational drug studies in Duchenne and their enrollment criteria, check out Jett Foundation's Clinical Trial Cheat Sheet.
A guide sheet from Jett Foundation on how to navigate testing and diagnosis, as well as advice for the steps to follow.
A recording of a virtual Jett Foundation and Camp Promise event, featuring a family from the Duchenne community explaining tips & tricks to be best prepared for a camp experience.
A Rare Disease Day podcast recording from the Two Disabled Dudes, Kyle Bryant and Sean Baumstark, who moderated Jett Foundation's 2024 Rare Disease Day event.
A resource list of known physicians in the United States who treat and care for female carriers of Duchenne muscular dystrophy.
PediaLink provides a course highlighting the specialty care and emerging therapies related to the care and management of DMD as well as the common issues affecting children with DMD and...
Through this webinar series, clinicians will be better informed about care consideration and emerging therapies related to the care and management of individuals with DMD

Welcome Packet

We invite all in the community to request our Welcome Packet, whether a newly diagnosed family, clinician, industry partner, family member, or friend, to learn more about Duchenne and available resources.

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

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