Resource Library

Resources to extend and enrich the lives of individuals affected by Duchenne muscular dystrophy and other neuromuscular disorders.

Families

Female Carriers

Individuals

Medical Professionals

Partners

Volunteers

Health Insurance Flight Plan

A guide to navigating the insurance process in Duchenne. This booklet will teach you the basics about insurance, including claims and denials.

Clinical Trial Flight Plan

This booklet guide will walk you through the basic steps of participating in a trial, key glossary terms, where to find clinical trials, and more.

Clinical Trial Cheat Sheet

For a quick look at enrolling or soon to be enrolling investigational drug studies in Duchenne and their enrollment criteria, check out Jett Foundation's Clinical Trial Cheat Sheet.

Emergency Care Considerations

Families, Individuals, Medical Professionals

Contact information, considerations, recommendations, and more about emergency care from Parent Project Muscular Dystrophy.

PJ’s Steroid Protocol

Families, Medical Professionals

Steroid protocol designed to assist healthcare providers from the Nicholoff Family.

Fat Embolism Syndrome

Families, Individuals, Medical Professionals

An overview and important information on Fat Embolism Syndrome provided by Parent Project Muscular Dystrophy.

How Palliative Care Could Address Unmet Needs of Patients With Rare Diseases

Families, Individuals

Hospice News shares how palliative approaches can help address gaps of care among patients with a diverse range of rare chronic and serious illnesses.

Occupational Therapy from Cure Duchenne

Medical Professionals

CureDuchenne offers a high level program of educational opportunities and resources for occupational therapists and allied healthcare professionals who treat those with Duchenne muscular dystrophy.

Physical Therapy (for Physical Therapists)

Medical Professionals

CureDuchenne offers a high level program of educational opportunities and resources for physical therapists and allied healthcare professionals who treat those with Duchenne muscular dystrophy.

Welcome Packet

We invite all in the community to request our Welcome Packet, whether a newly diagnosed family, clinician, industry partner, family member, or friend, to learn more about Duchenne and available resources.