Welcome Package
Been diagnosed or want to learn more?
Request a Package
About Duchenne
Facts, Treatment, and Care
Read More
Duchenne News
The latest from our partners.
Read Now
Join Our Community
Learn more about our programs.
Community Ambassadors
Meet our Community Ambassadors.
Clinical Trials
A quick look at investigational drug studies.
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
Get Started
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Request a Flight Plan
Resource Library
Read about our resources for Healthcare Providers.
Resources for Healthcare Providers
Let us navigate with you.
Jett Foundation knows and understands that getting a diagnosis like Duchenne is far from easy. We have created a packet for families on this journey – through its highs and lows.
We invite all in the community to request our Welcome Packet, whether a newly diagnosed family, clinician, industry partner, family member, or friend.
We hope the materials within our Welcome Packet will help you gain a better understanding of Duchenne, Jett Foundation’s empowering programs, and supportive resources from our greater community.
Below are some of the things that you can expect to receive:
The devastation that hits when your child, your grandchild, sibling, your niece, nephew, or classmate is diagnosed with a deadly, progressive, rare disease like Duchenne muscular dystrophy is paralyzing. I know because my family and I lived through it in 2001 when my then 5-year-old son Jett was diagnosed with Duchenne.
Like you, my family and I felt completely alone, terrified of what the future would hold for our little boy, and unsure of what our next move should be.
After spending over 16 years counseling and assisting newly diagnosed families as the executive director of Jett Foundation and more importantly a fellow mom, I want to put into words the few pieces of advice I can give you on how to best handle this diagnosis.
You can and will survive this.
My Best,
Christine
Jett’s mom, Jett Foundation Founder & Board Member
Use the resources below to learn more about genetics and information surrounding mutations and testing.
This resource is specifically for resources related to NORD Member Qualifications.
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | info@jettfoundation.org
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