Family Support Groups

Jett Foundation continues to promote and assist family support groups to help build stronger support systems, relationships, education, and connections across the Duchenne community. Visit one of our Family Support Group events to obtain resources and learn more from others in the Duchenne community!

Porch Nite

Porch Nite was founded in 2018 by two Jett Foundation Community Ambassadors and moms of children affected by Duchenne to bring love, support, and laughter to mothers affected by Duchenne across the United States.

Each virtual Porch Nite event is free and will be live via Zoom at 7:00PM ET. Register below! After you register, you will receive an email with the details to join the Zoom call.

Porch Nite, - Hosted by Moms for Moms

Upcoming Porch Nite Dates

January 8 (virtual): Open Conversations >>

January 22 (virtual): Open Conversations >>

February 5 (virtual): Open Conversations >>

February 19 (virtual): Open Conversations >>

March 4 (virtual): Open Conversations >>

April 15 (virtual): Open Conversations >>

April 29 (virtual): Open Conversations >>

May 17-19 (in-person): San Marcos, TX >>

June 3 (virtual): Open Conversations >>

September 9 (virtual): Open Conversations >>

September 23 (virtual): Open Conversations >>

October 7 (virtual): Open Conversations >>

November 4 (virtual): Open Conversations >>

November 18 (virtual): Open Conversations >>

December 9 (virtual): Open Conversations >>

Carrier Conversations

Carrier Conversations is Jett Foundation’s monthly virtual support group for women in the Duchenne community who are carriers of Duchenne muscular dystrophy (whether they are manifesting or not).

This group is a safe space for carriers to connect and chat with each other. It is an informal, intimate setting that ensures women feel comfortable and empowered in organic conversations that arise, which may include but are not limited to: care, being a caregiver, self-care, medical issues, guilt, and more.

Upcoming Carrier Conversations Dates

January 4 (virtual): Carrier Conversations >>

February 3 (virtual): Carrier Conversations >>

March 14 (virtual): Carrier Conversations >>

April 20 (virtual): Carrier Conversations >>

May 9 (virtual): Carrier Conversations >>

June 8 (virtual): Carrier Conversations >>

Book of Knowledge

During our Book of Knowledge Porch Nite session, parents can expect to compile important information regarding your child’s medical condition and contact information in one safe space – your Book of Knowledge -for reference in case of an emergency.

Thank you to our 2023 Porch Nite Sponsors:

If you are interested in becoming a sponsor of our Family Support Group programming, please email maura@jettfoundation.org.

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

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