Family Support Groups

Jett Foundation continues to promote and assist family support groups to help build stronger support systems, relationships, education, and connections across the Duchenne community. Visit one of our Family Support Group events to obtain resources and learn more from others in the Duchenne community!

Porch Nite

Porch Nite was founded in 2018 by two Jett Foundation Community Ambassadors and moms of children affected by Duchenne to bring love, support, and laughter to mothers affected by Duchenne across the United States.

Each virtual Porch Nite event is free and will be live via Zoom at 7:00PM ET. Register below! After you register, you will receive an email with the details to join the Zoom call.

Upcoming Porch Nite Dates

August 28 (virtual): Open Porch Nite Conversations >>

September 11 (virtual): Open Porch Nite Conversations >>

September 25 (virtual): Open Porch Nite Conversations >>

October 13-15 (in-person): Charleston, South Carolina >>

October 30 (virtual): Open Porch Nite Conversations >>

November 13 (virtual): Open Porch Nite Conversations >>

November 27 (virtual): Open Porch Nite Conversations >>

December 11 (virtual): Open Porch Nite Conversations >>

Carrier Conversations

Carrier Conversations is Jett Foundation’s monthly virtual support group for women in the Duchenne community who are carriers of Duchenne muscular dystrophy (whether they are manifesting or not).

This group is a safe space for carriers to connect and chat with each other. It is an informal, intimate setting that ensures women feel comfortable and empowered in organic conversations that arise, which may include but are not limited to: care, being a caregiver, self-care, medical issues, guilt, and more.

Upcoming Carrier Conversations Dates

September 14 (virtual): Carrier Conversations >>

October 19 (virtual): Carrier Conversations >>

November 30 (virtual): Carrier Conversations >>

Book of Knowledge

During our Book of Knowledge Porch Nite session, parents can expect to compile important information regarding your child’s medical condition and contact information in one safe space – your Book of Knowledge -for reference in case of an emergency.

Download a Printable Book of Knowledge Template