Family Support Groups

Jett Foundation continues to promote and assist family support groups such as Porch Nite to help build stronger support systems, relationships, education, and connections across the Duchenne community. Visit one of our Family Support Group events to obtain resources and learn more from others in the Duchenne community!

Porch Nite

Porch Nite was founded in 2018 by two Jett Foundation Community Ambassadors and moms of children affected by Duchenne, Dana Edwards and Perlita Hains, to bring love, support, and laughter to mothers affected by Duchenne across the United States.

Since we can’t meet in person amidst the challenges of COVID-19, our program is temporarily being held virtually. Each Porch Nite event will be live via Zoom at 7:00PM ET. Porch Nite is free and open on a first-come, first-served basis to the first 25 registrants. Register below! After you register, you will receive an email with the details to join the Zoom call.

Porch Nite, - Hosted by Moms for Moms

Upcoming Virtual Porch Nites Dates & Themes

August 29: Back to Our Roots & Service Animals
Register for August 29

September 12: Non-Ambulatory
Register for September 12

September 26: Managing All Aspects of Siblings
Register for September 26

October 10: Children Connecting With Peers
Register for October 10

October 24: Support for Single Parents
Register for October 24

November 7: Newly Diagnosed Under 10
Register for November 7

November 21: Grace Trail
Register for November 21

December 5: Adults Living With Duchenne (18+)
Register for December 5

 

Book of Knowledge

During our Book of Knowledge Porch Nite session, parents can expect to compile important information regarding your child’s medical condition and contact information in one safe space – your Book of Knowledge -for reference in case of an emergency.