Jett Foundation continues to promote and assist family support groups to help build stronger support systems, relationships, education, and connections across the Duchenne community. Visit one of our Family Support Group events to obtain resources and learn more from others in the Duchenne community!
Porch Nite was founded in 2018 by two Jett Foundation Community Ambassadors and moms of children affected by Duchenne to bring love, support, and laughter to mothers affected by Duchenne across the United States.
Each virtual Porch Nite event is free and will be live via Zoom at 7:00PM ET. Register below! After you register, you will receive an email with the details to join the Zoom call.
This group is a safe space for carriers to connect and chat with each other. It is an informal, intimate setting that ensures women feel comfortable and empowered in organic conversations that arise, which may include but are not limited to: care, being a caregiver, self-care, medical issues, guilt, and more.
During our Book of Knowledge Porch Nite session, parents can expect to compile important information regarding your child’s medical condition and contact information in one safe space – your Book of Knowledge -for reference in case of an emergency.