Family Support Groups

Jett Foundation continues to promote and assist family support groups to help build stronger support systems, relationships, education, and connections across the Duchenne community. Visit one of our Family Support Group events to obtain resources and learn more from others in the Duchenne community!

Porch Nite

Porch Nite was founded in 2018 by two Jett Foundation Community Ambassadors and moms of children affected by Duchenne to bring love, support, and laughter to mothers affected by Duchenne across the United States.

Porch Nite, - Hosted by Moms for Moms

Upcoming Porch Nite Dates

September 9 (virtual): Porch Nite >>

September 23 (virtual): Porch Nite >>

October 7 (virtual): Porch Nite >>

November 4 (virtual): Porch Nite >>

November 18 (virtual): Porch Nite >>

December 9 (virtual): Porch Nite >>

Carrier Conversations

Carrier Conversations is Jett Foundation’s monthly virtual support group for women in the Duchenne community who are carriers of Duchenne muscular dystrophy (whether they are manifesting or not).

This group is a safe space for carriers to connect and chat with each other. It is an informal, intimate setting that ensures women feel comfortable and empowered in organic conversations that arise, which may include but are not limited to: care, being a caregiver, self-care, medical issues, guilt, and more.

Upcoming Carrier Conversations Dates

August 31 (virtual): Carrier Conversations >>

September 19 (virtual): Carrier Conversations >>

October 19 (virtual): Carrier Conversations >>

November 14 (virtual): Carrier Conversations >>

Upcoming Caregiver Connextion Dates

July 19 (virtual): Caregiver Connextion >>

August 16 (virtual): Caregiver Connextion >>

September 13 (virtual): Caregiver Connextion >>

October 11 (virtual): Caregiver Connextion >>

November 15 (virtual): Caregiver Connextion >>

Caregiver Connextion

Caregiver Connextion is Jett Foundation’s monthly virtual support group for parents, family members or caregivers of females who have been diagnosed with Duchenne or are symptomatic carriers.

This group is a safe space for caregivers (moms, dads, aunts, uncles, grandparents, guardians, etc.) to connect and chat with each other about caring for their daughters, granddaughters, and female loved ones impacted by Duchenne. It is an informal, intimate setting that ensures caregivers feel comfortable and empowered in organic conversations that arise, which may include but are not limited to: care, being a caregiver, self-care, supporting siblings, guilt, and more.

Book of Knowledge

During our Book of Knowledge Porch Nite session, parents can expect to compile important information regarding your child’s medical condition and contact information in one safe space – your Book of Knowledge – for reference in case of an emergency.

Request a template below to receive this great tool for families who have children with special health care needs. Using this Book of Knowledge will help keep track of any important information involved in you or your child’s healthcare journey.

Thank you to our 2024 Support Group Sponsors:

If you are interested in becoming a sponsor of our Family Support Group programming, please email [email protected].

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

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