Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.

2023 Family Workshops

We are excited to host more in-person Family Workshops in 2023. While we plan to be on the ground for all workshops, details are subject to change due to COVID-19 or other circumstances.

Dates and locations are subject to change

Gainesville, FL

Minneapolis, MN

Billings, MT

Kansas City, MO

Additional Information

Through these workshops, we empower patients and families with the knowledge needed to be their own best advocates, spread awareness about Duchenne in the medical field, and help accelerate research and development.

During these workshops, you’ll hear from Duchenne clinicians, pharmaceutical companies in the Duchenne space, and local experts on topics like clinical trials, standard of care, physical therapy, adaptive sports, and much more. You’ll also learn about helpful resources and our direct service programs such as Camp Promise, Jett Giving Fund, and Community Ambassadors.

Community Webinar Series

For the safety and wellbeing of our community amid the COVID-19 outbreak, we began holding our educational programming virtually.

As we bring back our in-person workshops, we will also continue to host webinars virtually in order to reach more families across the world. Check out our upcoming webinars or previous recordings below!