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Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.
2026 Locations: Utah, Oregon, Arkansas, and New York
*Dates and locations are subject to change.
When: May 2, 2026
Where: DoubleTree by Hilton Hotel Portland (1000 NE Multnomah St., Portland, OR 97232)
If you have an interest in booking a hotel room, please click here. The room block will close April 11, 2026. If you have any issues, or need accessible transportation from the airport, please reach out to [email protected]. The deadline to register for the workshop is April 22, 2026.


Dr. Evers is originally from Portland and grew up enjoying the outdoors the state has to offer. He studied economics and biochemistry at Berkeley before working in finance for Intel in Hillsboro after which he attended medical school at UCLA, graduating in 2012. He trained in Pediatrics at Seattle Children’s Hospital prior to working as a pediatric Hospitalist in Seattle caring for sick newborns and children. He then trained in Pediatric Cardiology at Cincinnati Children’s Hospital and completed a final year of advanced training in pediatric pulmonary hypertension prior to accepting a faculty position at OHSU in 2020.

Dr. Allyson Brown is a pediatrician who cares for children with long-term breathing problems like chronic respiratory failure, neuromuscular lung disease and asthma. She uses many kinds of treatments including inhaled medicines, daily airway treatments to help the lungs open and clear mucus, breathing support without a ventilator, and tracheostomy or invasive ventilation. She also performs bronchoscopy, a procedure that uses a small camera to look inside the airways and check for infection.
Dr. Brown enjoys teaching children and their families how other health conditions affect their lungs. She works with them to create care plans that fit their daily lives, use the latest research, and improve both quality of life and long-term lung function. Her goal is to help kids take part in the activities that bring them joy without being held back by lung disease.

Dr. Finanger specializes in caring for children with neurolomuscular conditions. Erika Finanger, MD, is an Professor in the Division of Pediatric Neurology at OHSU. She received her medical degree from Mayo Medical School. Her postgraduate training included: a residency in Pediatrics at Mayo School of Graduate Medical Education; a residency in Pediatric Neurology, a Fellowship in Neuromuscular Neurology and a Research Fellowship in Pediatric Neurology at Johns Hopkins University as well as Graduate Training Program in Clinical Investigation at Johns Hopkins School of Public Health. Dr. Finanger holds certification in Neurology with Special Qualification in Child Neurology from the American Board of Neurology and Psychiatry and in Neuromuscular Medicine from the American Board of Neurology and Psychiatry. She has been at OHSU since 2010. In her free time, she enjoys reading, being outdoors and following her favorite sports team, the Thorns.
When: August 22, 2026
Where: DoubleTree by Hilton Little Rock (424 W. Markham St. Little Rock, AR 72201)
* If childcare is a barrier to registering, please reach out to [email protected]. While we don’t offer formal childcare, we’re happy to explore possible solutions to help make your attendance possible. If travel is a barrier, please reach out as well. Travel assistance may be available!
Stay tuned for more workshop, topic, and speaker details.
When: October 25, 2026
Where: Exact Hotel and Workshop Location TBD
Registration and Details Coming Soon
Through these workshops, we empower patients and families with the knowledge needed to be their own best advocates, spread awareness about Duchenne in the medical field, and help accelerate research and development.
During these workshops, you’ll hear from Duchenne clinicians, pharmaceutical companies in the Duchenne space, and local experts on topics like clinical trials, standard of care, physical therapy, adaptive sports, and much more. You’ll also learn about helpful resources and our direct service programs such as Camp Promise, Jett Giving Fund, and Community Ambassadors.
As we continue to host in-person workshops, we will also continue to host webinars virtually in order to reach more families across the world. Check out our upcoming webinars or previous recordings below!
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.