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About Duchenne
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Clinical Trials
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Female Carriers
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Resource Library
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Resources for Partners
How To Help
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Clinical Trials
A quick look at investigational drug studies.
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Duchenne News
Stay up to date with the latest discoveries.
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Dan and DMD & Other Books
These books will help parents, guardians, and individuals as they navigate a Duchenne diagnosis and journey.
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Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
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Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
“I wake up and just lay in bed until 8 to mentally prepare for the day.”
“My counselor helps me get up in my chair and drink my nutritional supplement because I’m not much of an early breakfast person. After that I head to the bathroom, brush my teeth, and change into my costume for the day. My counselor fixes my hair and makes sure I looked good, then we were off to the first activities of the day at 9:30am.”
“Today we went down by the water and hung out with friends for awhile. Then worked on some general cards in Arts & Crafts, including some epic invitations for various dance dates throughout the week.”
“Lunch is a really fun meal. My counselor helps serve me and cuts up my food. We usually sit with our cabin or other friends, and we try to put something in the Rumor Box everyday to hear it read at lunch or dinner.”
“During rest hour I lay down so I could regain energy for the rest of the fun filled day. Not everyone naps, but we all hangout in our cabin and it’s generally a low key hangout hour.”
“In the afternoon I attend a variety of events, anything from adaptive cycling and swimming, to a guest improv performance or boating. The options are always interesting! Plus, we hit up snack shack and grab fruit or chips during this time.”
“Dinner is probably the loudest of all of our meal times, and the energy is high with excitement about the evening activity. My favorite meal so far has been Hispanic themed chicken and rice.”
“The dances are my favorite part so my counselor and I take our time getting ready and then dance the night away with friends!”
“I start getting ready for bed at 10:00pm by showering, changing into pjs, and brushing teeth. Everyone has a different night routine, but I am usually in bed by 11:00pm (the curfew for the Purple Cabin).”
“Sometimes us girls will gossip and then fall asleep within about an hour. My nights at camp are good, but it can take time to get used to sharing a room with 5-10 other people, the different sounds of camp, and a different mattress. You can request a hospital bed if that’s what you’re used to and so I do; it makes it easier for my counselor to transfer me. As the week goes on I definitely sleep more soundly.”
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.