Welcome Packet
Been diagnosed or want to learn more?
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Transition Resources
GotTransition resources and tools.
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Community Ambassadors
Meet our Community Ambassadors
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Clinical Trials
A quick look at investigational drug studies
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Female Carriers
Resources, Care, and Programs
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Connect with our Carrier Specialist
Get support and help navigating your journey
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Team Jett
Activate your muscles at events to raise awareness and funds for the Duchenne community.
Join Team Jett
Become a Partner
Learn about creating a partnership and joining our community.
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Host a Webinar
Learn about our community webinar series.
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Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
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Dan and DMD & Other Books
These books will help parents, guardians, and individuals as they navigate a Duchenne diagnosis and journey.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Download the Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
On April 15, 2023, we will host an in-person Porch Nite retreat for moms in Gainesville, FL proceeding our Family Workshop. Porch Nites bring love, laughter, and support to one another while we discuss important topics for a Duchenne journey.
These events are free to join and we encourage all to bring up any discussions they would like. Please see below for more information and we hope to see you in Gainesville!
Porch Nite: Gainesville, FL
Saturday, April 15, 2023
Registration for our April 15 Gainesville Family Workshop and Porch Nite has closed. Can’t make it? Check out our events calendar to connect with us soon!
Saturday, April 15, 2023
3PM ET – Check-in and Welcome Bags
6PM ET – Porch Nite Begins
Sunday, April 16, 2023
10AM ET – Brunch
11AM ET – Checkout/Farewells
Location: Hilton University of Florida Hotel, 1714 SW 34th St, Gainesville, FL 32607
Room Block Link: Booking within the hotel room block is separate from our Porch Nite registration.
Limited accessible rooms and rooms within a room block may still be held. If you need an accessible room, please call the hotel at 352-371-3600 to make accommodations and let them know you are with Jett Foundation’s group.
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.