Welcome Packet
Been diagnosed or want to learn more?
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Transition Resources
GotTransition resources and tools.
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Community Ambassadors
Meet our Community Ambassadors
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Clinical Trials
A quick look at investigational drug studies
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Female Carriers
Resources, Care, and Programs
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Connect with our Carrier Specialist
Get support and help navigating your journey
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
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Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Team Jett
Activate your muscles at events to raise awareness and funds for the Duchenne community.
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Become a Partner
Learn about creating a partnership and joining our community.
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Host a Webinar
Learn about our community webinar series.
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Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
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Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
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Dan and DMD & Other Books
These books will help parents, guardians, and individuals as they navigate a Duchenne diagnosis and journey.
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Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Download the Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
Jett Foundation was founded in 2001 by one mom on a mission to save her son. While our early days were focused on building awareness, advancing research and accelerating treatments, we have now evolved to offer direct service programs for families that have become an anchor in the Duchenne community. These one-of-a-kind programs wrap around the entire family, offering education, connection, and support to families from cities across the nation and from all backgrounds.
Join us in bringing this exciting and hopeful vision to life. Jett’s Place will serve as a premier wellness and retreat center specifically designed for the Duchenne community. It will be a sanctuary where individuals can come to can build lifelong friendships, discover new passions, and gain independence through engaging education, social activities, and life-skills programming.
Built on the insights of the community and powered by volunteerism, Jett’s Place will provide an environment that is completely and systematically designed around the needs of children, youth and adults with Duchenne. This will be a space where people with Duchenne can truly be—where they can be themselves, be free, and be celebrated in a community that embraces them fully, just as they are. Whether they are seeking the tranquility of nature or the thrill of new experiences, our campus provides the support they need to thrive.
At Jett’s Place, there will be no barriers. Everyone is welcome. And everyone belongs.
Together, we can create a lasting sanctuary where every person with Duchenne can experience the joy of being among friends, being in nature, and being their best self.
This idyllic setting, tucked away in the heart of nature, offers a serene environment designed for respite, community connection, and lasting tranquility.
We are implementing the Jett’s Place master plan through a strategic, multi-phase build-out. Your support accelerates this timeline; increased funding allows us to expand our campus footprint and introduce critical features—like our accessible pool and additional respite cabins—ahead of schedule.
Christine McSherry
Jett Foundation, Founder
Robert Higgins
Lubin & Meyer
Annie Ganot
Solid Biosciences
Jordan Johnson
CBS, A Xerox Company
Diana Johnson
Rovia Clinical Research
Eric Snyder
Jett Foundation
Maura Carroll
Jett Foundation
The journey toward Jett’s Place has officially begun! We are currently in the quiet phase of our campaign and have raised over $5M dollars toward our $10.7M goal. Please consider joining the ever growing support to make this dream come true!
Let’s build this together. For more information on how you can help, contact our team.
Eric Snyder: [email protected]
Maura Carroll: [email protected]
Yale Appliance
Shea Concrete
Quincy Mutual
NS Pharma
Anonymous
Kelliher Family
Garbarino Family
Scalora Family
Hope For Gus