Awareness Days

Each year, Jett Foundation celebrates multiple awareness days by bringing together members of the Duchenne community, Jett Foundation family, rare disease advocates, clinicians, researchers, and many more through in-person and virtual events.

We hope you will join us to hear the experiences and advice from others in the rare disease community, as well as share your own journey!

Annual Events

Rare Disease Day

Jett Foundation will celebrate its 6th Annual Rare Disease Day on February 28, 2023 with a presentation and panel discussion focused on anxiety and mental health in Duchenne muscular dystrophy.

World Duchenne Awareness Day

For the past 7 years, Jett Foundation has hosted this annual event of celebration, remembrance, and awareness for the Duchenne community.

Mental Health resource Fair

Mental health issues impact everyone in our community; from parents and caregivers to individuals living with Duchenne as well as healthcare professionals and industry partners.

Blog Posts

Jett Foundation Celebrates 5th Annual Rare Disease Day

On February 28, 2022, Jett Foundation hosted a virtual event to celebrate Rare Disease Day 2022. This was Jett Foundation’s 5th annual Rare Disease Day, which welcomed speakers from the Duchenne and rare disease communities in a panel discussion themed “Thriving with Duchenne.”

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Recap of Our Virtual 2021 World Duchenne Awareness Day

For the past several years, Jett Foundation has hosted an annual World Duchenne Awareness Day (WDAD) event of celebration and remembrance in the Boston area, the epicenter for rare disease research. Once again we were able to take the opportunity to broaden our celebration beyond our traditional Boston area event and engage with our families and partners all across the country virtually.

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Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

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