
Jett Foundation Helps New York Family Maintain Accessible Van and Housing
“As a parent of a son living with Duchenne, the mission of my wife and myself is to do whatever we can to help our son enjoy every moment of life,” says Todd.
Welcome Package
Been diagnosed or want to learn more?
Request a Package
Treatment & Care
The medical fight against Duchenne.
Read More
Duchenne News
The latest from our partners.
Read Now
Join Our Community
Learn more about our programs.
Community Ambassadors
Meet Our Community Ambassadors.
Clinical Trials
A quick look at investigational drug studies.
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
Get Started
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Request a Flight Plan
Resource Library
Read about our resources for Healthcare Providers.
Resources for Healthcare Providers
Each year, Jett Foundation celebrates multiple awareness days by bringing together members of the Duchenne community, Jett Foundation family, rare disease advocates, clinicians, researchers, and many more through in-person and virtual events.
We hope you will join us to hear the experiences and advice from others in the rare disease community, as well as share your own journey!
“As a parent of a son living with Duchenne, the mission of my wife and myself is to do whatever we can to help our son enjoy every moment of life,” says Todd.
A Connecticut father reached out to Jett Foundation for assistance with putting food on the table for his family. Jason is a proud father of two boys. His son, Justin (12), was diagnosed with Duchenne muscular dystrophy at just 18-months-old.
“For four years, I have stressed about how to deal with getting a safe vehicle. This is life-changing” says Michelle, mother of Kelvin Jones. Kelvin is a young man diagnosed with Duchenne muscular dystrophy from Johnston, Ohio.
“As our boys keep growing, we run into more barriers for transporting our family in a safe manner. Having two boys with Duchenne is incredibly difficult,” says Ember Thomas, the mother of two boys who have Duchenne muscular dystrophy.
On March 6, 2022, The Connecticut Chiefs hosted the 2nd annual Hockey for Jett Charity Game to support the Duchenne community.
Kelly Fitzpatrick says her life changed when she learned that not one, but all three of her sons have Duchenne muscular dystrophy. Connor (11), Kian (9), and Finnegan McVey (7) are three brothers from Poynette, WI, finding joy in spending each day with one another and their mother who tackles every Duchenne obstacle as a single parent.
Jett Foundation, Inc.
36 Cordage Park Circle
Suite 328 | Plymouth, MA 02360
781-585-5566 | info@jettfoundation.org
Sign up to receive our newsletter and updates.
Required fields are denoted with an asterisk (*)