Awareness Days

Each year, Jett Foundation celebrates multiple awareness days by bringing together members of the Duchenne community, Jett Foundation family, rare disease advocates, clinicians, researchers, and many more through in-person and virtual events.

We hope you will join us to hear the experiences and advice from others in the rare disease community, as well as share your own journey!

Annual Events

Rare Disease Day

This year, Jett Foundation celebrated it’s 5th annual Rare Disease Day with a panel of speakers sharing personal experiences about how they are thriving with Duchenne.

World Duchenne Awareness Day

For the past 5 years, Jett Foundation has hosted this annual event of celebration and remembrance in the Boston area, the epicenter for rare disease research.

Recent Blog Posts

Three Brothers From WI Receive New Van Through Accessible Vehicle Fund

Kelly Fitzpatrick says her life changed when she learned that not one, but all three of her sons have Duchenne muscular dystrophy. Connor (11), Kian (9), and Finnegan McVey (7) are three brothers from Poynette, WI, finding joy in spending each day with one another and their mother who tackles every Duchenne obstacle as a single parent.

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