Living to the Fullest, Thriving with Duchenne: Jett Foundation’s 2024 Rare Disease Day Event
Individuals from the Duchenne and rare disease community shared on obtaining their license, experiencing great thrills, starting careers, and more.
Welcome Packet
Been diagnosed or want to learn more?
Request a Packet
About Duchenne
Facts, Treatment, and Care
Read More
Duchenne News
The latest from our partners.
Read Now
Female Carriers
Resources, Care, and Programs
Community Ambassadors
Meet our Community Ambassadors
Clinical Trials
A quick look at investigational drug studies
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
Get Started
Host a Webinar
Learn about our community webinar series.
View Upcoming Webinars
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Request a Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
About Female Carriers
Facts and information about female carriers.
Learn More
Resources for Carriers
Tools and materials for female carriers.
Read More
Connect with our Specialist
Get support and help navigating your journey.
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
General Resources
Check out helpful tools and transition resources.
Find Resources
Transition Resources
GotTransition resources and tools.
Learn More
Camp Promise
Locations and information on how to apply.
Learn More
Community Webinars
Watch past recordings on care and resource topics.
Watch Now
Each year, Jett Foundation celebrates multiple awareness days by bringing together members of the Duchenne community, Jett Foundation family, rare disease advocates, clinicians, researchers, and many more through in-person and virtual events.
We hope you will join us to hear the experiences and advice from others in the rare disease community, as well as share your own journey!
Jett Foundation will celebrate its 6th Annual Rare Disease Day on February 28, 2023 with a presentation and panel discussion focused on anxiety and mental health in Duchenne muscular dystrophy.
For the past 7 years, Jett Foundation has hosted this annual event of celebration, remembrance, and awareness for the Duchenne community.
Mental health issues impact everyone in our community; from parents and caregivers to individuals living with Duchenne as well as healthcare professionals and industry partners.
Individuals from the Duchenne and rare disease community shared on obtaining their license, experiencing great thrills, starting careers, and more.
Panel discussions, accessible and adaptation demonstrations, a luminaria ceremony, and more!
Jett Foundation’s Thriving with Duchenne Rare Disease Day event focused on anxiety and mental health
On September 7, 2022, Jett Foundation hosted its seventh annual World Duchenne Awareness Day (WDAD) celebration to recognize those in the Duchenne community.
On February 28, 2022, Jett Foundation hosted a virtual event to celebrate Rare Disease Day 2022. This was Jett Foundation’s 5th annual Rare Disease Day, which welcomed speakers from the Duchenne and rare disease communities in a panel discussion themed “Thriving with Duchenne.”
For the past several years, Jett Foundation has hosted an annual World Duchenne Awareness Day (WDAD) event of celebration and remembrance in the Boston area, the epicenter for rare disease research. Once again we were able to take the opportunity to broaden our celebration beyond our traditional Boston area event and engage with our families and partners all across the country virtually.
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | info@jettfoundation.org
Sign up to receive our newsletter and updates.
Required fields are denoted with an asterisk (*)
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.