Each year, Jett Foundation celebrates multiple awareness days and awareness months by bringing together members of the Duchenne community, Jett Foundation family, rare disease advocates, clinicians, researchers, and many more through in-person and virtual events.
We hope you will join us to hear the experiences and advice from others in the rare disease community, as well as share your own journey!
Jett Foundation recognizes rare disease day each February with a virtual panel discussion and engaging awareness efforts.
Jett Foundation’s World Duchenne Awareness Day brings together Duchenne families, community members, industry partners, and many more each September for both in-person and virtual activities.
Mental health issues impact everyone in our community; from parents and caregivers to individuals living with Duchenne as well as healthcare professionals and industry partners.
Each February, Jett Foundation’s community comes together to recognize Rare Disease Day. This is a time to elevate awareness, share lived experiences, and advocate for
Over the weekend of September 6-7, 2025, Jett Foundation’s community came together both in-person and virtually for an unforgettable World Duchenne Awareness Day (WDAD) weekend
Panelists and moderators shared their experiences with adaptive living, encouraging others to be limitless with their interests.
Awareness boxes, in-person luncheon, virtual panel discussion, and so much more!
Individuals from the Duchenne and rare disease community shared on obtaining their license, experiencing great thrills, starting careers, and more.
Panel discussions, accessible and adaptation demonstrations, a luminaria ceremony, and more!
Jett Foundation’s Thriving with Duchenne Rare Disease Day event focused on anxiety and mental health
On September 7, 2022, Jett Foundation hosted its seventh annual World Duchenne Awareness Day (WDAD) celebration to recognize those in the Duchenne community.
On February 28, 2022, Jett Foundation hosted a virtual event to celebrate Rare Disease Day 2022. This was Jett Foundation’s 5th annual Rare Disease Day, which welcomed speakers from the Duchenne and rare disease communities in a panel discussion themed “Thriving with Duchenne.”
For the past several years, Jett Foundation has hosted an annual World Duchenne Awareness Day (WDAD) event of celebration and remembrance in the Boston area, the epicenter for rare disease research. Once again we were able to take the opportunity to broaden our celebration beyond our traditional Boston area event and engage with our families and partners all across the country virtually.