Today, Sarepta shared their “Quality of Life Measures” survey for those who are living with Duchenne (age 16+) or caregivers of individuals living with Duchenne. The survey is meant to examine the effectiveness of quality-of-life measures for people with Duchenne muscular dystrophy and highlight any challenges. The survey will remain annonymous.
To start the survey, click here.
For further information regarding this study please contact the project lead:
- George Morgan firstname.lastname@example.org
- Dr Philip Powell – email@example.com