Community Webinar: Navigating Duchenne Genetics with PPMD

When:
April 30, 2026 1:00PM

Jett Foundation’s friends from Parent Project Muscular Dystrophy will join our Community Webinar Series this April to speak on navigating Duchenne muscular dystrophy genetics from diagnosis to directions you can take. We hope you will join to learn more and gain valuable insight to navigate your journey.

Community Webinar: Navigating Duchenne Genetics with PPMD
April 30, 2026 | 1PM ET | via Zoom


Guest Speakers:

Kayla Banks, MS, CGC, is a Manager of Community Research and Genetic Services at PPMD. Her background is in genetic counseling, and before joining PPMD four years ago, she worked as a clinical genetic counselor as well as working in clinical trial coordination. With PPMD, her job is to connect families and healthcare professionals to education and information related to the DMD gene, including helping with access to genetic testing through the Decode Duchenne program.

 

 

 

 

 

Lauren Bogue, MS, CGC, is the Lead Curator for The Duchenne Registry at PPMD. Her background is in genetic counseling, and before joining PPMD two years ago, she worked as a clinical genetic counselor at a variety of organizations. With PPMD, her job is to facilitate participation, data quality, and utilization of The Duchenne Registry, which is a research program open to all individuals who have Duchenne, Becker, or who are carriers for these conditions. She also supports genetics education alongside her teammates.

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Granite Links | Quincy, MA

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Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

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