Hembree Family

Fundraising for an Accessible Van

The Hembree Family is from Phoenix, Arizona, and is currently navigating a life with a Duchenne muscular dystrophy diagnosis. Cole Hembree (11) lives with Duchenne, a progressive neuromuscular disorder that causes a loss of motor, pulmonary, and cardiac function. He was diagnosed on his eighth birthday.

Crysta Hembree is a single mother to Cole and is his primary caregiver. They most enjoy playing video games and visiting with family.

Crysta struggles to get Cole to his medical appointments and daily functions due to the lack of accessible transportation. As Cole grows in size, it has become very difficult and not safe for his family to manually lift him, so he typically remains at home.

“I rely on Lyft or public transportation to go to the store, and Cole can’t come with me at all,” shares Crysta. “I also have to plan his medical appointments far in advance to make sure we can get there.”

The Hembree Family are participants in Jett Foundation’s Accessible Vehicle Fund branch of the Jett Giving Fund. They will aim to raise half or more of the funds needed for their accessible vehicle before Jett Foundation steps in to cover the remaining costs and purchase the vehicle outright.

The family says, “Having an accessible vehicle would take the worry away from missing appointments, school, and being able to safely run errands together. Cole loves to accomplish everything possible, and this would help him do that.” 

You can help Cole attain the freedom and independence he deserves by contributing toward his fundraising goal below!

All donations to Jett Foundation are tax-deductible to the extent allowed under applicable law and is an unrestricted contribution to the Jett Giving Fund. The family is working to raise half the funds needed for their van or more; when they reach their goal, Jett Foundation will cover the remaining costs and coordinate purchase and delivery of the vehicle.

Support the Hembree family with a donation today!



About Jett Giving Fund’s Accessible Vehicle Fund

Jett Giving Fund is Jett Foundation’s financial assistance program for families impacted by Duchenne muscular dystrophy who are in need of accessible vehicles or emergency support. As part of the Accessible Vehicle Fund, families fundraise half the funds needed or more for an accessible vehicle, and Jett Foundation covers the remaining costs once they reach their goal. 

If other resources have already been used to meet a specific need, if there is no longer a specific need, and/or if donations have been received in excess of a specific need, donations made in furtherance of a specific need will be applied for general purposes of the Jett Giving Fund. If the Jett Giving Fund no longer exists, all donations will be applied to further the general charitable mission of Jett Foundation.

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open