DMD Webinar Series from American Academy of Pediatrics
Through this webinar series, clinicians will be better informed about care consideration and emerging therapies related to the care and management of individuals with DMD
Overjoyed About Accessibility
Overjoyed is a new way to create and play digitally turning small mouse movements into key presses and other actions, allowing even people with low to no dexterity or movement to control their computer.
Six Core Elements of HealthCare Transition: Transitioning Youth to an Adult Health Care Clinician
Got Transition packages and tips for Internal Medicine, Family Medicine, and Med-Peds Clinicians on transitioning children and young adults to adult clinicians.
ASGCT Gene Therapy 101
This Gene Therapy Basics webpage from the American Society of Gene + Cell Therapy helps with understanding genes through descriptions, visuals, and videos.
PPMD: Duchenne 101
An overview of Duchenne, its genetic causes, progression, types of mutations, and more.
MDA Care Center Network
Click to visit a list of Muscular Dystrophy Association’s care center locations in the United States. The MDA Care Center Network offers tens of thousands of appointments each year for individuals living with muscular dystrophy, ALS, and other neuromuscular diseases to access expert multidisciplinary care, clinical trials, and to connect with MDA and the neuromuscular community.
DMD & the Heart
The heart is a muscle, too! This article, written by Dr. Chet Villa–a pediatric cardiologist at Cincinnati Children’s–discusses cardiac issues and care in Duchenne.
Health Insurance Flight Plan
A guide to navigating the insurance process in Duchenne. This booklet will teach you the basics about insurance, including claims and denials.
Clinical Trial Flight Plan
This booklet guide will walk you through the basic steps of participating in a trial, key glossary terms, where to find clinical trials, and more.
Dan and DMD Book
While telling a child about a rare disease is never easy, we hope that our free resource, Dan and DMD, will help parents and guardians as they prepare to talk to their children about Duchenne.
State by State Resource Guide
This tool serves as a dynamic list of resources and tools for the Duchenne community, broken down by state.
Jett Foundation’s Brochure
Jett programs overview, information on Duchenne, our impact, and more.