WORLD DUCHENNE AWARENESS DAY
Saturday, September 7, 2019
Embassy Suites by Hilton, Waltham, MA
Registration Deadline: August 29, 2019
Jett Foundation hosts this annual event of celebration and remembrance in the Boston area, the epicenter for rare disease research. In recognition of this annual worldwide day dedicated to Duchenne muscular dystrophy, we bring local patients and families, Duchenne experts, and industry partners together under one roof to celebrate advances made in Duchenne research, and to acknowledge the challenges still to come.
This year, as we come together to demonstrate that we are stronger than Duchenne, we will be welcoming and cheering on the Gals for Cal, as they prepare to race the next day in the Hopkinton Title 9 Triathlon. Family and friends are welcome to attend.
WDAD 2019 Agenda
11:30am - Check-in, t-shirts, kids room open with crafts and activities, musical entertainment by the band, MinaMize featuring Sam Safford
12:00pm - Lunch Buffet
12:45pm - Speaking Program & Group Photo
Ashley Kelliher, JettRide veteran and Camp Promise counselor
Tracy Seckler, Charley's Fund Founder, Duchenne Clinic at UMASS champion, and Charley's mom
Annie Ganot, Gals for Cal athlete, co-founder of Solid Biosciences, and Eytani's mom
1:15pm - Music by MinaMize featuring Sam Safford
World Duchenne Awareness Day Cambridge is a fun, family-friendly event open to all in our community. Thanks to our sponsors, tickets are free of cost for families affected by Duchenne, Gals for Cal athletes, healthcare providers, and academics. Register today!
2019 World Duchenne Awareness Day Shirts
Can't make it to the event? With a $25 donation to Jett Foundation, you can receive one of our 2019 WDAD shirts to celebrate in your own community on September 7.