World Duchenne Awareness Day Cambridge
Thursday, September 7, 2017
Royal soneseta cambridge
Join Jett Foundation as we host this annual event of celebration and remembrance in Cambridge, MA, the epicenter for rare disease research. In recognition of this annual worldwide day dedicated to Duchenne muscular dystrophy, we bring local patients and families, Duchenne experts, and industry partners together under one roof to celebrate advances made in Duchenne research, and to acknowledge the challenges still to come.
The celebration begins at 6:30 with appetizers and cocktails, followed by a short speaking program of rare disease thought leaders and patient advocates, and a group photo outside along The Esplanade.
The common theme of World Duchenne Awareness Day is red, because red is the global color for stop, and Jett Foundation, and the rest of the Duchenne community are determined to STOP Duchenne in it's tracks. In honor of World Duchenne Awareness Day and the families and individuals affected by the disease, bridges, buildings, and other landmarks around Boston will light up red, bringing awareness and hope for a cure to Massachusetts, the international capital for biomedical innovation.
In a parallel effort to bring awareness to this devastating disease, Wahlburgers and celebrity chef Paul Wahlberg will donate a portion of their profits from September 7th to Jett Foundation, to help improve the lives of children and young adults living with Duchenne, and support Jett Foundation's mission to save lives by stopping this deadly disease.
World Duchenne Awareness Day Cambridge is free of cost for families affected by Duchenne, as well as healthcare providers and academics.
Registration for will open Monday, July 9th. Space is limited.