Featured Programs

To help keep our community connected, Jett Foundation is providing programming and events both in-person and virtually. Our goal is to provide convenient access to Duchenne-related educational opportunities, spaces for connection with friends (old and new), chances to build support systems, and ways to encourage one another at all times.

Independence & Empowerment

Jett Giving Fund

The Jett Giving Fund offers families financial assistance through three branches of support: the Accessible Vehicle Fund, Equipment Assistance Fund, and Emergency Fund.

Learn About Jett Giving Fund

Camp Promise

Camp Promise is a free, week-long camp and year-round program for kids, teens, and adults with neuromuscular disorders.

Check Out Camp Promise

Community & Education

Family Workshops

Family Workshops are our national educational program that brings together clinicians, researchers, and families affected by Duchenne to learn about care, crucial information, and resources in many cities each year.

Learn About Family Workshops

Community Webinars

Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.

Explore Community Webinars

Welcome Packets

Through our educational programming initiatives, we empower those in the Duchenne community with the knowledge needed to be their own best advocates, spread awareness about Duchenne in the medical field, and help accelerate research and development.

Request a Welcome Packet

Community Ambassadors

Our ambassadors are Jett Foundation’s ears, eyes, and voices in the Duchenne community. They are advocates, educational resources, and pillars of emotional support.

Family Support Groups

Jett Foundation continues to promote and assist family support groups to help build stronger support systems, relationships, education, and connections across the Duchenne community.

Read About Support Groups

Advocacy & Research

Awareness Days

For many years, Jett Foundation has hosted annual events of celebration, remembrance, and awareness in the Boston area, the epicenter for rare disease research, as well as in a virtual environment.

Learn About Awareness Days

Team Jett

Team Jett is Jett Foundation’s endurance athletic event series that takes place each summer. Across road races, triathlons, bike rides and more, Team Jett helps raise vital funds and awareness for our community.

Check Out Team Jett

Sponsorship Opportunities

Thanks to the unwavering support of community members like you, Jett Foundation is able to offer many resources and opportunities to the Duchenne community in both virtual and in-person settings.

Programs

Events