Welcome Packet
Been diagnosed or want to learn more?
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Transition Resources
GotTransition resources and tools.
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Community Ambassadors
Meet our Community Ambassadors
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Clinical Trials
A quick look at investigational drug studies
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Female Carriers
Resources, Care, and Programs
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Connect with our Carrier Specialist
Get support and help navigating your journey
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Team Jett
Activate your muscles at events to raise awareness and funds for the Duchenne community.
Join Team Jett
Become a Partner
Learn about creating a partnership and joining our community.
Get Started
Host a Webinar
Learn about our community webinar series.
View Upcoming Webinars
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Dan and DMD & Other Books
These books will help parents, guardians, and individuals as they navigate a Duchenne diagnosis and journey.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Download the Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
Join Jett Foundation’s Community Webinar Series on July 20 at 1PM EST as we welcome Annie Tulkin, Founder and Director of Accessible College, for a presentation and discussion on all things higher education.
What to Consider for Higher Education
Wednesday, July 20, 2022 | 1:00PM – 2:00PM EST
Annie Tulkin is the Founder and Director of Accessible College, as well as an author and public speaker. She is an expert in the area of college preparation and transition for students with physical disabilities and health conditions, and she supports students and families across the country. Annie was the Associate Director of the Academic Resource Center at Georgetown University for nearly 6 years. In that position, she supported undergraduate, graduate, and medical students with physical disabilities and health conditions and oversaw academic support services for the entire student body.
Annie has worked in the field of disability for much of her professional career. She holds a Bachelor’s Degree in Secondary Education from DePaul University, a Masters in Special Education from The University of Wisconsin-Madison, and a Certificate in Health Coaching from Georgetown University. Annie was a Peace Corps Volunteer (Mongolia, ‘03-’05) and a Fulbright Fellow (Mongolia, ‘07-’08). She resides in Silver Spring, MD with her husband and daughter.
Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.