Community Webinar Series: John Howell, discussion on vocational rehab & driving with Duchenne.
Join our Community webinar Series on August 4 at 1PM EST for a presentation and discussion on respiratory management in Duchenne muscular dystrophy.
Join Jett Foundation’s Community Webinar Series on July 20 as we welcome Annie Tulkin for a presentation and discussion on all things higher education.
When: March 30, 2022 4:00PM Join Jett Foundation’s Community Webinar series as we welcome Susan Apkon, MD, and Carolyn Kelley, PT, from Children’s Hospital of Colorado. Dr. Apkon and Carolyn will be presenting and discussing non-surgical and surgical management of the tight foot and ankle. Register Today Guest Speakers Dr. Susan Apkon, MDChief Pediatric RehabilitationChildren’s […]
When: January 26, 2022 4:00PM Join Jett Foundation’s Community Webinar Series as we welcome Dr. Natalie Truba from Nationwide Children’s Hospital, and Jett Community Ambassador Jessica Rownd for a presentation and discussion on Anxiety, Behaviors, and Stress Management. Register Today Our Community Webinar Series is focused on ensuring that our Duchenne community is “better prepared” […]
When: December 15, 2021 2:00PM Join our Community Webinar Series as we welcome Sarepta Therapeutics. Sarepta will provide introductory information about clinical trials and genetic testing and an overview of their clinical trial pipeline and programs. Guest speaker Kimber Barnett, Senior Medical Science Liaison at Sarepta Therapeutics, will be presenting. Register Today Guest Speaker Kimber […]
When: November 3, 2021 2:00PM Join us for a live webinar–FibroGen DMD Program Overview–as part of our Community Webinar Series. This webinar is an informational session with FibroGen, which will provide an overview of their DMD program, including their PH2 study outcomes and PH3 LELANTOS program. There will be an opportunity for live questions and […]
When: October 27, 2021 2:00PM Please join Jett Foundation and Astellas for a webinar to discuss the Phase 1b clinical trial studying ASP0367 in Duchenne muscular dystrophy. The trial is enrolling boys ages 8 to 16 years old who are taking a stable dose of steroids and have difficulty walking, regardless of mutation type. ASP0367 […]
When: October 20, 2021 2:00PM Join us for a live webinar–Transforming the Treatment Paradigm for Duchenne Muscular Dystrophy–presented by Dyne Therapeutics as part of our Community Webinar Series. Dyne is to present an overview of its FORCE platform and Duchenne drug development program to the Jett Foundation community, and then engage in a conversation to […]
When: October 13, 2021 2:00PM Join us for a live webinar–EDG-5506: A Novel Small Molecule to Protect Dystrophic Muscle presented by Edgewise Therapeutics–as part of our Community Webinar Series. Edgewise Therapeutics is a clinical-stage biopharmaceutical company focused on the discovery, development and commercialization of innovative treatments for severe, rare muscle disorders. “Our lead program, EDG-5506, […]
When: September 29, 2021 2:00PM Join us for a live webinar–PTC: Ataluren, Clinical Trials, and Genetic Testing 101–as part of our Community Webinar Series. Come learn about Ataluren, current clinical trials for young boys living with Duchenne (nonsense mutations), and the importance of genetic testing. Register Today Learn more about PTC’s study to evaluate the […]
When: September 7, 2022 3:00PM Join us for a live webinar–Advancements in Duchenne Drug Development and FDA Approved Therapies–as part of our Community Webinar Series. Our speaker, Han C. Phan, MD, will go into detail about advancements in Duchenne drug development and FDA approved therapies to the Jett Foundation community, and then engage in a […]