When: November 29, 2022 1:00PM Join Jett Foundation’s Community Webinar Series on November 29 at 1PM EST as Sarepta Therapeutics presents on caregiver wellness and setting yourself up for success with self-care. When a child is diagnosed and living with a rare disease like Duchenne, the caregiver’s self-care often becomes less of a priority. Caregivers […]
Community Webinar with Edgewise Therapeutics on their novel approach to protect muscle in Duchenne and Becker
DYNE-251: Moving from Bench to Clinic to Deliver a Potentially Transformative Therapy for Duchenne Muscular Dystrophy
Dyne Therapeutics provides an overview on their Phase 1/2 clinical trial, DELIVER
Tips & helpful information about Jett Foundation’s Accessible Vehicle Fund application process
Community Webinar Series featuring PepGen to discuss enhanced delivery of oligonucleotides in Duchenne muscular dystrophy
Community Webinar Series: John Howell, discussion on what to consider before getting behind the wheel.
Join our Community webinar Series on August 4 at 1PM EST for a presentation and discussion on respiratory management in Duchenne muscular dystrophy.
Join Jett Foundation’s Community Webinar Series on July 20 as we welcome Annie Tulkin for a presentation and discussion on all things higher education.
When: March 30, 2022 4:00PM Join Jett Foundation’s Community Webinar series as we welcome Susan Apkon, MD, and Carolyn Kelley, PT, from Children’s Hospital of Colorado. Dr. Apkon and Carolyn will be presenting and discussing non-surgical and surgical management of the tight foot and ankle. Register Today Guest Speakers Dr. Susan Apkon, MDChief Pediatric RehabilitationChildren’s […]
When: January 26, 2022 4:00PM Join Jett Foundation’s Community Webinar Series as we welcome Dr. Natalie Truba from Nationwide Children’s Hospital, and Jett Community Ambassador Jessica Rownd for a presentation and discussion on Anxiety, Behaviors, and Stress Management. Register Today Our Community Webinar Series is focused on ensuring that our Duchenne community is “better prepared” […]
When: December 15, 2021 2:00PM Join our Community Webinar Series as we welcome Sarepta Therapeutics. Sarepta will provide introductory information about clinical trials and genetic testing and an overview of their clinical trial pipeline and programs. Guest speaker Kimber Barnett, Senior Medical Science Liaison at Sarepta Therapeutics, will be presenting. Register Today Guest Speaker Kimber […]
When: November 3, 2021 2:00PM Join us for a live webinar–FibroGen DMD Program Overview–as part of our Community Webinar Series. This webinar is an informational session with FibroGen, which will provide an overview of their DMD program, including their PH2 study outcomes and PH3 LELANTOS program. There will be an opportunity for live questions and […]
When: October 27, 2021 2:00PM Please join Jett Foundation and Astellas for a webinar to discuss the Phase 1b clinical trial studying ASP0367 in Duchenne muscular dystrophy. The trial is enrolling boys ages 8 to 16 years old who are taking a stable dose of steroids and have difficulty walking, regardless of mutation type. ASP0367 […]