Myths Around IEPs and 504 Plans
A Community Webinar hosted by Jett Foundation and Jill Castle on myths around IEPs and 504 plans.
VILTEPSO: An FDA-Approved Duchenne Treatment for Patients Amenable to Exon 53 Skipping
Jett Foundation’s Community Webinar Series with a presentation from NS Pharma on VILTEPSO, an FDA-approved Duchenne treatment
Transforming the Treatment Paradigm for Duchenne – Presented by Dyne Therapeutics
Community Webinar on Transforming the Treatment Paradigm for Duchenne, Presented by Dyne Therapeutics
Navigating Special Needs Trusts
Jett Foundation’s Community Webinar Series featuring a presentation on how to navigate special needs trusts.
Transition of Care in Duchenne
Jett Foundation’s Community Webinar Series featuring a presentation on transition of care in Duchenne
Air Travel with Duchenne – Presented by All Wheels Up
Jett Foundation’s Community Webinar Series featuring a presentation from All Wheels Up on air travel with Duchenne
Supporting Siblings of Individuals with Duchenne
Jett Foundation’s Community Webinar Series featuring a presentation on support for siblings of individuals with Duchenne
Females with Dystrophinopathy – Management of Care and Access to Care
Jett Foundation’s Community Webinar Series with a presentation around management to care and access to care for females with dystrophinopathy
Caregiver Wellness: Setting Yourself Up for Success with Self-Care Presented by Sarepta
When: November 29, 2022 1:00PM Join Jett Foundation’s Community Webinar Series on November 29 at 1PM EST as Sarepta Therapeutics presents on caregiver wellness and setting yourself up for success with self-care. When a child is diagnosed and living with a rare disease like Duchenne, the caregiver’s self-care often becomes less of a priority. Caregivers […]
Edgewise Therapeutics: A Novel Approach to Protect Muscle in Duchenne and Becker Muscular Dystrophy
Community Webinar with Edgewise Therapeutics on their novel approach to protect muscle in Duchenne and Becker
DYNE-251: Moving from Bench to Clinic to Deliver a Potentially Transformative Therapy for Duchenne Muscular Dystrophy
Dyne Therapeutics provides an overview on their Phase 1/2 clinical trial, DELIVER
Navigating the Accessible Vehicle Fund Application Process
Tips & helpful information about Jett Foundation’s Accessible Vehicle Fund application process
PepGen: Enhanced Delivery Oligonucleotides in Duchenne Muscular Dystrophy
Community Webinar Series featuring PepGen to discuss enhanced delivery of oligonucleotides in Duchenne muscular dystrophy
