Caregiver Wellness: Setting Yourself Up for Success with Self-Care Presented by Sarepta

When: November 29, 2022 1:00PM Join Jett Foundation’s Community Webinar Series on November 29 at 1PM EST as Sarepta Therapeutics presents on caregiver wellness and setting yourself up for success with self-care. When a child is diagnosed and living with a rare disease like Duchenne, the caregiver’s self-care often becomes less of a priority. Caregivers […]

Respiratory Management in Duchenne

Join our Community webinar Series on August 4 at 1PM EST for a presentation and discussion on respiratory management in Duchenne muscular dystrophy.

What to Consider for Higher Education

Join Jett Foundation’s Community Webinar Series on July 20 as we welcome Annie Tulkin for a presentation and discussion on all things higher education.

Non-Surgical and Surgical Management of the Tight Foot and Ankle

When: March 30, 2022 4:00PM Join Jett Foundation’s Community Webinar series as we welcome Susan Apkon, MD, and Carolyn Kelley, PT, from Children’s Hospital of Colorado. Dr. Apkon and Carolyn will be presenting and discussing non-surgical and surgical management of the tight foot and ankle. Register Today Guest Speakers Dr. Susan Apkon, MDChief Pediatric RehabilitationChildren’s […]

Anxiety, Behaviors, and Stress Management

When: January 26, 2022 4:00PM Join Jett Foundation’s Community Webinar Series as we welcome Dr. Natalie Truba from Nationwide Children’s Hospital, and Jett Community Ambassador Jessica Rownd for a presentation and discussion on Anxiety, Behaviors, and Stress Management. Register Today Our Community Webinar Series is focused on ensuring that our Duchenne community is “better prepared” […]

Sarepta Therapeutics Update on Pipeline and Programs

When: December 15, 2021 2:00PM Join our Community Webinar Series as we welcome Sarepta Therapeutics. Sarepta will provide introductory information about clinical trials and genetic testing and an overview of their clinical trial pipeline and programs. Guest speaker Kimber Barnett, Senior Medical Science Liaison at Sarepta Therapeutics, will be presenting. Register Today Guest Speaker Kimber […]

FibroGen DMD Program Overview

When: November 3, 2021 2:00PM Join us for a live webinar–FibroGen DMD Program Overview–as part of our Community Webinar Series. This webinar is an informational session with FibroGen, which will provide an overview of their DMD program, including their PH2 study outcomes and PH3 LELANTOS program. There will be an opportunity for live questions and […]

ASP0367 Development Program Update

When: October 27, 2021 2:00PM Please join Jett Foundation and Astellas for a webinar to discuss the Phase 1b clinical trial studying ASP0367 in Duchenne muscular dystrophy. The trial is enrolling boys ages 8 to 16 years old who are taking a stable dose of steroids and have difficulty walking, regardless of mutation type. ASP0367 […]