Community Webinars Archives

Community Webinar: Jett Foundation’s Programs Presented & Translated by The Akari Foundation

On May 7, 2026, The Akari Foundation will join our Community Webinar Series to speak about Jett Foundation’s family program opportunities while translating in Spanish. We encourage you to join to learn more about how Jett Foundation can assist your family while navigating Duchenne muscular dystrophy. Jett Foundation’s Programs Presented & Translated by The Akari […]

Community Webinar: Transition of Care

Transition of care is a frequently requested topic in the Duchenne and rare disease community as it pertains to planning, setting up personnel, location of resources, and much more. Please join us on July 9 to hear from Dr. Aaron Zelikovich and Dr. Dennis Keselman on transition of care and planning for adult care. Community […]

Unlock the Muscle: Embedding Flexibility into Daily Routines

Muscles and their flexibility are an important topic for individuals and families navigating a Duchenne diagnosis. Tune in to Jett Foundation’s Community Webinar Series on April 9, 2026, to hear from Victoria Kern of Penn State Health Therapy Services on embedding flexibility into daily routines for individuals and families living with Duchenene. Unlock the Muscle: […]

Community Webinar: Navigating Duchenne Genetics with PPMD

Jett Foundation’s friends from Parent Project Muscular Dystrophy will join our Community Webinar Series this April to speak on navigating Duchenne muscular dystrophy genetics from diagnosis to directions you can take. We hope you will join to learn more and gain valuable insight to navigate your journey. Community Webinar: Navigating Duchenne Genetics with PPMD April […]

Dyne Therapeutics: Topline Results from Phase 1/2 DELIVER Trial in Exon 51 Skip Amenable DMD

Please join us for a presentation with Dr. Doug Kerr, Chief Medical Officer at Dyne Therapeutics. Dr. Kerr will share topline results from the DELIVER clinical trial, along with new long-term data showing sustained benefits out to 24 months. DELIVER is Dyne’s global, randomized, placebo-controlled, double-blind, Phase 1/2 trial that evaluated the safety, tolerability and […]

On the Road Together: Lived Experience and Insurance Strategies for Accessible Vehicles with Duchenne

This webinar will bring together lived experience and practical guidance to explore accessible options, while answering common questions about insurance that often accompanies these needs for families.

Community Webinar: Jett Foundation 2026 Programs for Duchenne Community

Jett Foundation has many programs to support the Duchenne community in 2026! We invite you to listen in on January 29, 2026 at 1PM ET to learn more about programs such as the Jett Giving Fund, Camp Promise, educational workshops and Community Webinars, Family Support Groups, and more. Jett Foundation 2026 Programs to Support Duchenne […]

Community Webinar: Healthy and Balanced Nutrition Choices

We invite you to tune in to Jett Foundation’s Community Webinar Series on December 4, 2025, to hear from Marla Mungovan, RDN, LDN, CDCES, on nutrition with Duchenne muscular dystrophy. Marla will touch on traveling with feeding tubes, healthy meal options, and more. Community Webinar: Healthy and Balanced Nutrition Choices December 4, 2025 | 1pm […]

Community Webinar: Understanding the Clinical Trial Journey

NEW DATE: December 12, 2025 – Hop on Zoom to hear from medical professionals in the Duchenne space on the clinical trial process for individuals and families impacted by Duchenne muscular dystrophy and rare diseases. Jett Foundation’s Community Webinars are free to join and we encourage all to ask questions. From Molecule to Market: Understanding […]

Community Webinar: Child Life Specialists and Fostering Well-Being

Join Jett Foundation for our upcoming Community Webinar, Child Life Specialists: Fostering Well-being in the Context of Duchenne. During this webinar, Andrea Lerude will explore the vital role Child Life Specialists play in supporting the emotional and developmental needs of children and families navigating Duchenne muscular dystrophy. Learn how these professionals help reduce stress, build […]

Community Webinar: Navigating the Accessible Vehicle Fund Application Process

The Jett team will walk through the application process, eligibility requirements, and more.

Community Webinar: Endocrine Issues and Bone Health

We invite you to tune in to Jett Foundation’s Community Webinar Series on August 21, 2025 at 1pm ET to hear from Jaclyn Tamaroff of Vanderbilt University Medical Center on endocrine issues and bone health in Duchenne and rare diseases. Community Webinar: Endocrine Issues and Bone Health August 21, 2025 | via Zoom 1pm ET […]