Welcome Packet
Been diagnosed or want to learn more?
Request a Packet
About Duchenne
Facts, Treatment, and Care
Read More
Duchenne News
The latest from our partners.
Read Now
Transition Resources
GotTransition resources and tools.
Learn More
Community Ambassadors
Meet our Community Ambassadors
Read Now
Clinical Trials
A quick look at investigational drug studies
Read More
Female Carriers
Resources, Care, and Programs
Learn More
Connect with our Carrier Specialist
Get support and help navigating your journey
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
Get Started
Host a Webinar
Learn about our community webinar series.
View Upcoming Webinars
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Request a Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
Activities on September 6 & 7
Every year on September 7th, the global community acknowledges World Duchenne Awareness Day. This year, Jett Foundation is honoring the day with an in-person WDAD event on Saturday, September 6th, 2025 and a virtual component with Awareness Boxes on Sunday, September 7th, 2025.
In honor of this annual worldwide day dedicated to Duchenne muscular dystrophy, we bring individuals and families, Duchenne experts, and industry partners together to recognize different aspects of Duchenne life, acknowledge the challenges still to come, and show that we are Stronger than Duchenne.
In 2025, we will host both in-person and virtual events for World Duchenne Awareness Day. We are excited to connect with you this September!
This year’s World Duchenne Awareness Day t-shirt proudly embodies the World Duchenne Organization’s powerful global theme: “Family: the heart of care.” The design visually represents this by featuring intertwining hearts and a strand of DNA. This imagery beautifully symbolizes the unwavering support, love, and central role families play in nurturing and advocating for loved ones living with Duchenne, truly being the heart of the care journey for many.
Our WDAD Awareness Boxes contain items to aid in your awareness activities, show your Jett swag, and participate from home. We encourage you to snap pictures using these items, tag @JettFoundation on social media, and spread Duchenne awareness anywhere you can!
Boxes are currently SOLD OUT, but shirts are still available to order.

Change your Facebook profile photo in honor of WDAD! Use our Canva template to customize the frame with your personal photo.
How to use the template from a desktop:
How to use the template from a phone:
Ideas to Get Your Local Community Involved
To learn more about WDAD sponsorship opportunities, please email [email protected] or view our Sponsorship Packet.
Thank you to our Advocacy Sponsors:
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.