Welcome Packet
Been diagnosed or want to learn more?
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Transition Resources
GotTransition resources and tools.
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Community Ambassadors
Meet our Community Ambassadors
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Clinical Trials
A quick look at investigational drug studies
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Female Carriers
Resources, Care, and Programs
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Connect with our Carrier Specialist
Get support and help navigating your journey
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Team Jett
Activate your muscles at events to raise awareness and funds for the Duchenne community.
Join Team Jett
Become a Partner
Learn about creating a partnership and joining our community.
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Host a Webinar
Learn about our community webinar series.
View Upcoming Webinars
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Dan and DMD & Other Books
These books will help parents, guardians, and individuals as they navigate a Duchenne diagnosis and journey.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Download the Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
Join Jett Foundation’s Community Webinar Series on August 17 at 1:30pm ET as we welcome Jamie Santillo for a discussion on how to plan best when traveling with individuals who have disabilities. Please register ahead to receive the Zoom link.
Planning for Travel with a Disability
Thursday, August 17, 2023
1:30pm ET | 12:30pm CT | 11:30am MT | 10:30am PT
With a bachelor’s degree in Mass Communications from the University of South Florida and a master’s in management from Bellevue University, Jamie is the founder & CEO of the marketing firm, JS Creative Concepts & Marketing, as well as the travel agency, Adventures by Jamie. In addition to her businesses, Jamie is the lead development coach with Careers on Vacation and sits on a number of advisory boards. Born with congenital muscular dystrophy and a full-time power wheelchair user, Jamie has had to “think outside of the box” in many areas of her life. This mindset has crossed into her career, making her an absolute powerhouse for her client’s success and all those she partners with. Jamie is in a loving, interabled relationship with her boyfriend, Kevin. An adventure seeker by heart, she’s soared in a hot air balloon, ziplined over alligators, and most recently, went indoor skydiving. Next on the heart-pounding adventure list is flying in an open-air biplane and doing acrobatics.
Adam is a Travel Advisor for Adventures by Jamie diagnosed with Duchenne muscular dystrophy. Adam has a passion for traveling as well as helping others travel who live with disabilities.
Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.