Welcome Packet
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Transition Resources
GotTransition resources and tools.
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Community Ambassadors
Meet our Community Ambassadors
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Clinical Trials
A quick look at investigational drug studies
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Female Carriers
Resources, Care, and Programs
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Connect with our Carrier Specialist
Get support and help navigating your journey
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Carrier Conversations
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Upcoming Events
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
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Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Team Jett
Activate your muscles at events to raise awareness and funds for the Duchenne community.
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Become a Partner
Learn about creating a partnership and joining our community.
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Host a Webinar
Learn about our community webinar series.
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Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
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Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
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Dan and DMD & Other Books
These books will help parents, guardians, and individuals as they navigate a Duchenne diagnosis and journey.
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Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
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Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
Join Jett Foundation’s Community Webinar Series on April 18 at 1pm ET to hear from Larry Wayne Markham on management and access to care for female carriers of Duchenne muscular dystrophy.
Management and Access to Care for Females Carriers of Duchenne
Thursday, April 18, 2024
1pm ET | 12pm CT | 11am MT | 10am PT
Dr. Markham’s clinical interests and investigations have been focused in congenital heart conditions and inherited conditions with cardiovascular phenotype. One particular area of focus has been predictors of Duchenne Muscular Dystrophy cardiomyopathy disease progression to heart failure and death. Dr. Markham served as a member of the CDC Care Considerations Working Group, co-chair of the PPMD and NHLBI-sponsored Working Group on Contemporary Cardiac Issues in Duchenne Muscular Dystrophy and co-author of the 2017 AHA Scientific Statement entitled “Management of Cardiac Involvement Associated With Neuromuscular Diseases.”
Dr. Markham is Co-PI for the recently funded R01 entitled “Modeling Mortality in Duchenne Muscular Dystrophy Cardiomyopathy: Identification of Surrogate Outcome Measures for DMD Drug Trials” [1R01HL167969 (PI: Soslow/Markham/Goergen/Hor/Lin)]. As the Division Chief for Pediatric Cardiology and Co-Director of the Heart Center, he has worked to integrate cutting edge clinical care and to link translational research with patient centered outcomes across all areas of the Heart Center.
Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.