On May 20, 2023, Jett Foundation hosted its second Family Workshop of the year in Minneapolis, MN for families impacted by Duchenne. The community heard from educational speakers on topics such as Living Well with Duchenne, Endocrinology in Duchenne, Mobility and Independence, and more.
Dr. Jamie Eskuri, who discussed goals and priorities for living well with Duchenne, says, “Families should make sure they are aware of what everyone wants within different circumstances. The more we talk about the hard things, the easier they will become. Families also benefit from communicating with each other because someone else may be a voice for individuals impacted by Duchenne.”
The workshop also included a video presentation from Jett Community Ambassadors who spoke on their experiences with Duchenne, challenges they overcame, and advice for other families. The workshop concluded with presentations and a meet and greet from pharmaceutical companies in the Duchenne space who are able to provide information for families who wish to explore clinical trials, which are critical studies in the fight to cure Duchenne muscular dystrophy.
Jett Foundation’s Director of Programs Alexa Tinsley says, “We are very grateful for those who came to listen and speak at our Minneapolis Family Workshop. It was a wonderful time meeting new families and being able to share more about our programs to the community. It is not only exciting to connect with families in new cities each year, but mutually beneficial as the community and our partners hear from professionals in various industries within the Duchenne space. Jett Foundation looks forward to sharing these presentations and hosting new ones in the months ahead.”
A recording of the Minneapolis Family Workshop can be viewed on the Jett Foundation YouTube channel.
Jett Foundation plans to host more Family Workshops in 2023:
- Billings, MT (October – Date TBD)
- Columbia, MO (November – Date TBD)
You can help us to support families in the Duchenne community! Donate today or learn more about becoming a sponsor of our direct service programs by emailing email@example.com.
Thank you to our 2023 Family Workshop sponsors: