Welcome Packet
Been diagnosed or want to learn more?
Request a Packet
About Duchenne
Facts, Treatment, and Care
Read More
Duchenne News
The latest from our partners.
Read Now
Female Carriers
Resources, Care, and Programs
Community Ambassadors
Meet our Community Ambassadors
Clinical Trials
A quick look at investigational drug studies
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
Get Started
Host a Webinar
Learn about our community webinar series.
View Upcoming Webinars
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Request a Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
About Female Carriers
Facts and information about female carriers.
Learn More
Resources for Carriers
Tools and materials for female carriers.
Read More
Connect with our Specialist
Get support and help navigating your journey.
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
General Resources
Check out helpful tools and transition resources.
Find Resources
Transition Resources
GotTransition resources and tools.
Learn More
Camp Promise
Locations and information on how to apply.
Learn More
Community Webinars
Watch past recordings on care and resource topics.
Watch Now
“I wake up and just lay in bed until 8 to mentally prepare for the day.”
“My counselor helps me get up in my chair and drink my nutritional supplement because I’m not much of an early breakfast person. After that I head to the bathroom, brush my teeth, and change into my costume for the day. My counselor fixes my hair and makes sure I looked good, then we were off to the first activities of the day at 9:30am.”
“Today we went down by the water and hung out with friends for awhile. Then worked on some general cards in Arts & Crafts, including some epic invitations for various dance dates throughout the week.”
“Lunch is a really fun meal. My counselor helps serve me and cuts up my food. We usually sit with our cabin or other friends, and we try to put something in the Rumor Box everyday to hear it read at lunch or dinner.”
“During rest hour I lay down so I could regain energy for the rest of the fun filled day. Not everyone naps, but we all hangout in our cabin and it’s generally a low key hangout hour.”
“In the afternoon I attend a variety of events, anything from adaptive cycling and swimming, to a guest improv performance or boating. The options are always interesting! Plus, we hit up snack shack and grab fruit or chips during this time.”
“Dinner is probably the loudest of all of our meal times, and the energy is high with excitement about the evening activity. My favorite meal so far has been Hispanic themed chicken and rice.”
“The dances are my favorite part so my counselor and I take our time getting ready and then dance the night away with friends!”
“I start getting ready for bed at 10:00pm by showering, changing into pjs, and brushing teeth. Everyone has a different night routine, but I am usually in bed by 11:00pm (the curfew for the Purple Cabin).”
“Sometimes us girls will gossip and then fall asleep within about an hour. My nights at camp are good, but it can take time to get used to sharing a room with 5-10 other people, the different sounds of camp, and a different mattress. You can request a hospital bed if that’s what you’re used to and so I do; it makes it easier for my counselor to transfer me. As the week goes on I definitely sleep more soundly.”
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | [email protected]
Sign up to receive our newsletter and updates.
Required fields are denoted with an asterisk (*)Â
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.