Blog Category: Stronger Stories

“As our boys keep growing, we run into more barriers for transporting our family in a safe manner. Having two boys with Duchenne is incredibly difficult,” says Ember Thomas, the mother of two boys who have Duchenne muscular dystrophy.

On March 6, 2022, The Connecticut Chiefs hosted the 2nd annual Hockey for Jett Charity Game to support the Duchenne community.

Kelly Fitzpatrick says her life changed when she learned that not one, but all three of her sons have Duchenne muscular dystrophy. Connor (11), Kian (9), and Finnegan McVey (7) are three brothers from Poynette, WI, finding joy in spending each day with one another and their mother who tackles every Duchenne obstacle as a single parent.

Addison Schwab is a smart, stubborn, hard-working 12-year-old who was diagnosed with Duchenne muscular dystrophy at the age of two and a half.

Heather Neal’s 15-year-old son, Tyler Guidry, lives with Duchenne muscular dystrophy. Unfortunately, a Duchenne diagnosis and the obstacles it brings are not all that Heather and her family have had to endure.

“Nikko Roadster” is what Domenic Webb plans to name his new accessible van. Domenic is a 24-year-old young man from California, whose journey with Duchenne began in preschool.

In 2020, Jett Foundation expanded the Jett Giving Fund program to assist families experiencing unexpected financial hardship as a result of the COVID-19 pandemic. After hearing directly from families in our Duchenne muscular dystrophy community, the Emergency Fund arm of our program was launched providing timely financial assistance for necessities such as groceries, housing assistance, utility expenses or other unforeseen costs.

Choosing an accessible vehicle is a big decision, with many factors that influence what type of equipment will work best for an individual or family’s needs. We have broken down some of the top consideration factors to help you navigate the decision-making process.

On November 21st, Lance Hains and Mitch Spittle were the first athletes to represent Jett Foundation at the Philadelphia Marathon. Childhood friends Lance and Mitch decided to run the marathon in honor of Lance’s little brother Levi, who has Duchenne muscular dystrophy.

Anthony Planck is a 23-year-old young man from Tucson, Arizona. He loves his family and his pets. He also likes watching wrestling, movies and playing video games. Anthony was diagnosed with Duchenne muscular dystrophy when he was three years old.

Tyler lives with Duchenne muscular dystrophy, a genetic disorder that causes progressive loss of muscle affecting many parts of the body including skeletal muscles, heart, and lungs. With the disorder’s progression, Tyler has faced multiple bone breaks, undergone numerous surgeries, and persevered through various medical complications.

Getting in the car and going to a doctor’s appointment is a task that many of us take for granted. For Leslie Crowley, it was a herculean feat. Leslie (also known as joker, joke, bun, les, or junior) is a 26-year-old young man from Georgia, living with Duchenne muscular.