On February 28, 2022, Jett Foundation hosted a virtual event to celebrate Rare Disease Day 2022. This was Jett Foundation’s 5th annual Rare Disease Day, which welcomed speakers from the Duchenne and rare disease communities in a panel discussion themed “Thriving with Duchenne.”
Applications for our 2022 Accessible Vehicle Fund program will open on January 3, 2022 at jettfoundation.org/jett-giving-fund. Below are some frequently asked questions regarding the application process, eligibility requirements, and more.
Join us in welcoming the newest member of our team, Alexa Tinsley! Alexa is so excited to take on her new role as Director of Community Engagement at Jett Foundation. Alexa has always been passionate about non-profit work and the neuromuscular community.
During the holiday season, we are reminded how grateful we are for the things that we have. While we check off our gift-giving lists this Black Friday and Cyber Monday, there are so many ways to give back to those who need support in our Duchenne and neuromuscular community. Please consider giving hope to Jett Foundation and making a difference.
For the past several years, Jett Foundation has hosted an annual World Duchenne Awareness Day (WDAD) event of celebration and remembrance in the Boston area, the epicenter for rare disease research. Once again we were able to take the opportunity to broaden our celebration beyond our traditional Boston area event and engage with our families and partners all across the country virtually.
Jett Foundation, a non-profit organization dedicated to raising awareness and funds for Duchenne muscular dystrophy (DMD), will be cheering on their Gals for Cal triathlon team at the Max Performance Title 9 Triathlon in Hopkinton, MA on Sunday, September 12, 2021.
Brian Nicholoff has been involved in the Duchenne community since 1987, when his son PJ was diagnosed with Duchenne muscular dystrophy at the age of 4. Brian also has another son, Justin, who is 34-years-old and has a milder case of DMD.