Community Webinar: Management and Access to Care for Female Carriers of Duchenne

When:

April 18, 2024 1:00PM

Join Jett Foundation’s Community Webinar Series on April 18 at 1pm ET to hear from Larry Wayne Markham on management and access to care for female carriers of Duchenne muscular dystrophy.

Management and Access to Care for Females Carriers of Duchenne
Thursday, April 18, 2024
1pm ET | 12pm CT | 11am MT | 10am PT

Guest Speaker

Dr. Markham’s clinical interests and investigations have been focused in congenital heart conditions and inherited conditions with cardiovascular phenotype. One particular area of focus has been predictors of Duchenne Muscular Dystrophy cardiomyopathy disease progression to heart failure and death. Dr. Markham served as a member of the CDC Care Considerations Working Group, co-chair of the PPMD and NHLBI-sponsored Working Group on Contemporary Cardiac Issues in Duchenne Muscular Dystrophy and co-author of the 2017 AHA Scientific Statement entitled “Management of Cardiac Involvement Associated With Neuromuscular Diseases.”

Dr. Markham is Co-PI for the recently funded R01 entitled “Modeling Mortality in Duchenne Muscular Dystrophy Cardiomyopathy: Identification of Surrogate Outcome Measures for DMD Drug Trials” [1R01HL167969 (PI: Soslow/Markham/Goergen/Hor/Lin)]. As the Division Chief for Pediatric Cardiology and Co-Director of the Heart Center, he has worked to integrate cutting edge clinical care and to link translational research with patient centered outcomes across all areas of the Heart Center.

Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.

No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.