Community Webinar: Planning for Travel with a Disability

August 17, 2023 1:30PM

Join Jett Foundation’s Community Webinar Series on August 17 at 1:30pm ET as we welcome Jamie Santillo for a discussion on how to plan best when traveling with individuals who have disabilities. Please register ahead to receive the Zoom link.

Planning for Travel with a Disability
Thursday, August 17, 2023
1:30pm ET | 12:30pm CT | 11:30am MT | 10:30am PT


Jamie Santillo

Guest Speaker

With a bachelor’s degree in Mass Communications from the University of South Florida and a master’s in management from Bellevue University, Jamie is the founder & CEO of the marketing firm, JS Creative Concepts & Marketing, as well as the travel agency, Adventures by Jamie. In addition to her businesses, Jamie is the lead development coach with Careers on Vacation and sits on a number of advisory boards. Born with congenital muscular dystrophy and a full-time power wheelchair user, Jamie has had to “think outside of the box” in many areas of her life. This mindset has crossed into her career, making her an absolute powerhouse for her client’s success and all those she partners with. Jamie is in a loving, interabled relationship with her boyfriend, Kevin. An adventure seeker by heart, she’s soared in a hot air balloon, ziplined over alligators, and most recently, went indoor skydiving. Next on the heart-pounding adventure list is flying in an open-air biplane and doing acrobatics.

Adam Malone

Guest Speaker

Adam is a Travel Advisor for Adventures by Jamie diagnosed with Duchenne muscular dystrophy. Adam has a passion for traveling as well as helping others travel who live with disabilities.

Community Webinar Series - Better preparing for challenges in Duchenne

Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.

No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.

Experience the magic this summer!

How is the rare disease community accomplishing goals?

Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!

Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.

Accessible Vehicle Fund Applications Open