Welcome Packet
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Female Carriers
Resources, Care, and Programs
Community Ambassadors
Meet our Community Ambassadors
Clinical Trials
A quick look at investigational drug studies
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
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Host a Webinar
Learn about our community webinar series.
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Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Request a Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
About Female Carriers
Facts and information about female carriers.
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Resources for Carriers
Tools and materials for female carriers.
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Connect with our Specialist
Get support and help navigating your journey.
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
General Resources
Check out helpful tools and transition resources.
Find Resources
Transition Resources
GotTransition resources and tools.
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Camp Promise
Locations and information on how to apply.
Learn More
Community Webinars
Watch past recordings on care and resource topics.
Watch Now
Join Jett Foundation’s Community Webinar Series to hear from Rikki Hooper on palliative care options and treatment for individuals in the South Carolina, North Carolina, and Tennessee area.
Regional Palliative Care in the South
Thursday, August 22, 2024
1pm ET | 12pm CT | 11am MT | 10am PT
Rikki is a strong believer in quality care at end of life and advocates for her patients and families to achieve their goals. In 1991, Rikki immigrated to the U.S. after completing basic nurse education in England. As an RN, she worked in oncology and in critical care prior to becoming an FNP. As an FNP, she worked in critical care, sleep and pulmonary medicine before coming to Four Seasons in 2004.
Rikki is certified in Advanced Hospice and Palliative Nursing and provides care for patients in all settings, both pediatric and adult. She has presented at both regional and national meetings on a variety of topics. She also serves on the AAHPM Task Force for Quality. Outside of work, she has volunteered at the Free Clinics in Henderson County and has been a Girl Scout leader for 17 years. She has 2 daughters and 3 grandchildren. She loves to spend time outside, gardening, hiking and generally enjoying the mountains. She also enjoys sewing, knitting and cooking.
Our Community Webinar Series is focused on ensuring that our Duchenne and rare disease community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | [email protected]
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Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.