Welcome Packet
Been diagnosed or want to learn more?
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Female Carriers
Resources, Care, and Programs
Community Ambassadors
Meet our Community Ambassadors
Clinical Trials
A quick look at investigational drug studies
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
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Host a Webinar
Learn about our community webinar series.
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Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Request a Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
About Female Carriers
Facts and information about female carriers.
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Resources for Carriers
Tools and materials for female carriers.
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Connect with our Specialist
Get support and help navigating your journey.
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
General Resources
Check out helpful tools and transition resources.
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Transition Resources
GotTransition resources and tools.
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Camp Promise
Locations and information on how to apply.
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Community Webinars
Watch past recordings on care and resource topics.
Watch Now
Join us for a live webinar–EDG-5506: A Novel Small Molecule to Protect Dystrophic Muscle presented by Edgewise Therapeutics–as part of our Community Webinar Series. Edgewise Therapeutics is a clinical-stage biopharmaceutical company focused on the discovery, development and commercialization of innovative treatments for severe, rare muscle disorders.
“Our lead program, EDG-5506, is focused on Becker and Duchenne muscular dystrophies. We have successfully initiated Phase 1 healthy volunteer studies and plan to initiate studies in individuals with Becker in 2021. Our approach is novel and potentially complementary with current approaches, and works by directly targeting key muscle modulators.”
Joanne M. Donovan M.D., Ph.D.
Chief Medical Officer at Edgewise Therapeutics
Joanne M. Donovan, M.D., Ph.D., has been Chief Medical Officer at Edgewise Therapeutics, a biotechnology company focused on rare muscle disorders, since April, 2021. Dr. Donovan has been deeply involved in clinical development for Duchenne muscular dystrophy for the last decade in her role as Chief Medical Officer and Senior Vice President, Clinical Development at Catabasis Pharmaceuticals. Since 1989, she has been a staff physician at the VA Boston Healthcare System and is currently an Associate Clinical Professor of Medicine at Harvard Medical School. From 1998 to 2011, Dr. Donovan served in positions of increasing responsibility, ultimately as vice president of clinical development, at Genzyme. Dr. Donovan holds a Ph.D. in medical engineering and medical physics from the Massachusetts Institute of Technology, an M.D. from Harvard Medical School and an S.B. from the Massachusetts Institute of Technology. She completed residency training in internal medicine and a fellowship in gastroenterology at the Brigham and Women’s Hospital.
Alan Russell, Ph.D.
Chief Scientific Officer and Co-Founder
Alan Russell, Ph.D., serves as our Co-Founder, Chief Scientific Officer and a member of our board of directors. Previously, Dr. Russell served at GlaxoSmithKline as VP and Head of the Muscle Metabolism Discovery Performance Unit, leading a broad discovery and development effort focused on patients for whom muscle function is compromised. Prior to this, he worked at Cytokinetics Inc. and is the co-inventor of Tirasemtiv and Reldesemtiv, direct muscle sensitizers in clinical trials for Amyotrophic Lateral Sclerosis (ALS). Dr. Russell received a B.Pharm. in Pharmacy and Pharmacology and Ph.D. in Cell Biology and Gene Therapy from the University of Bath in the UK and Postdoctoral training at the Stanford University School of Medicine.
Abby Bronson, MBA
VP Patient Advocacy and External Innovation
Abby Bronson has served as our Vice President of Patient Advocacy and External Innovation since April 2020. Ms. Bronson recently served as the Senior Vice President of Research Strategy at Parent Project Muscular Dystrophy (PPMD) where she managed the research portfolio and developed novel trial strategies to accelerate the clinical trial process in Duchenne. Prior to PPMD, she was the Director of Operations at the Division of Clinical Innovation at NCATS, NIH. She has also had senior positions at MedImmune and Children’s National Medical Center. She holds an M.B.A. from the Wharton School of Business at the University of Pennsylvania and a B.A. from the University of Vermont.
Jett Foundation invites all members of the Duchenne community to attend our Community Webinar Series! This series is focused on topics tailored to help individuals and families impacted by Duchenne learn more about care, clinical trials, resources, and support. We are committed to providing these 1-hour presentations to empower individuals and families with the tools and resources needed to be their own best advocates.
View Our Upcoming Educational Webinars
Please contact [email protected] with any questions or if you’d like to become a future speaker at one of our community webinars. We look forward to having you participate in these virtual community engagement events!
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | [email protected]
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Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.