Welcome Packet
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Female Carriers
Resources, Care, and Programs
Community Ambassadors
Meet our Community Ambassadors
Clinical Trials
A quick look at investigational drug studies
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
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Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
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Host a Webinar
Learn about our community webinar series.
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Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
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Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
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Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
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Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
About Female Carriers
Facts and information about female carriers.
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Resources for Carriers
Tools and materials for female carriers.
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Connect with our Specialist
Get support and help navigating your journey.
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
General Resources
Check out helpful tools and transition resources.
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Transition Resources
GotTransition resources and tools.
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Camp Promise
Locations and information on how to apply.
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Community Webinars
Watch past recordings on care and resource topics.
Watch Now
Join our Community Webinar Series on November 17 at 11AM ET while we are joined by Edgewise Therapeutics to learn more about the clinical development program for EDG-5506, a myosin modulator, in Becker and Duchenne muscular dystrophies. The presentation will highlight the mechanism of action, results from the ongoing open label ARCH study in adults with Becker muscular dystrophy, and upcoming trials.
Edgewise Therapeutics: A Novel Approach to Protect Muscle in Duchenne and Becker Muscular Dystrophy
Thursday, November 17, 2022 | 11:00AM – 12:00PM EST
Dr. Joanne M. Donovan has been Chief Medical Officer at Edgewise Therapeutics since 2021. Previously, she served as Chief Medical Officer and Senior Vice President, Clinical Development at Catabasis Pharmaceuticals, where she led clinical development in therapeutic areas including Duchenne muscular dystrophy. Since 1989, she has been a staff physician at the VA Boston Healthcare System, where she was formerly Chief of Gastroenterology. Dr. Donovan has held appointments at Harvard Medical School, currently as Associate Clinical Professor of Medicine. From 1998 to 2011, Dr. Donovan served in positions of increasing responsibility, ultimately as vice president of clinical development, at Genzyme, a biotechnology company, where she played leadership roles in programs from IND to NDA in therapeutic areas including rare disease.
Dr. Donovan holds a Ph.D. in medical engineering and medical physics from the Massachusetts Institute of Technology, an M.D. from Harvard Medical School and an S.B. from the Massachusetts Institute of Technology. She completed residency training in internal medicine and a fellowship in gastroenterology at the Brigham and Women’s Hospital.
Dr. Alan Russell serves as Edgewise Therapeutics’ Co-Founder, Chief Scientific Officer and a member of their board of directors. Previously, Dr. Russell served at GlaxoSmithKline as VP and Head of the Muscle Metabolism Discovery Performance Unit, leading a broad discovery and development effort focused on patients for whom muscle function is compromised. Prior to this, he worked at Cytokinetics Inc. and is the co-inventor of Tirasemtiv and Reldesemtiv, direct muscle sensitizers in clinical trials for Amyotrophic Lateral Sclerosis (ALS). Dr. Russell received a B.Pharm. in Pharmacy and Pharmacology and Ph.D. in Cell Biology and Gene Therapy from the University of Bath in the UK and Postdoctoral training at the Stanford University School of Medicine.
Our Community Webinar Series is focused on ensuring that our Duchenne community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | [email protected]
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Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.