Welcome Packet
Been diagnosed or want to learn more?
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Female Carriers
Resources, Care, and Programs
Community Ambassadors
Meet our Community Ambassadors
Clinical Trials
A quick look at investigational drug studies
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
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Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
View our resources targeted toward volunteers.
Our Resources
Become a Partner
Learn about creating a partnership and joining our community.
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Host a Webinar
Learn about our community webinar series.
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Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
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Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
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Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Request a Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
About Female Carriers
Facts and information about female carriers.
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Resources for Carriers
Tools and materials for female carriers.
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Connect with our Specialist
Get support and help navigating your journey.
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
General Resources
Check out helpful tools and transition resources.
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Transition Resources
GotTransition resources and tools.
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Camp Promise
Locations and information on how to apply.
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Community Webinars
Watch past recordings on care and resource topics.
Watch Now
Join Jett Foundation’s Community Webinar series as we welcome Susan Apkon, MD, and Carolyn Kelley, PT, from Children’s Hospital of Colorado. Dr. Apkon and Carolyn will be presenting and discussing non-surgical and surgical management of the tight foot and ankle.
Dr. Susan Apkon, MD
Chief Pediatric Rehabilitation
Children’s Hospital Colorado
Dr. Susan Apkon is the Fischahs Chair in Pediatric Rehabilitation at Children’s Hospital Colorado. She is also a visiting professor and vice-chair of the Department of Physical Medicine and Rehabilitation at the University of Colorado School of Medicine. Dr. Apkon’s clinical focus is on the care of children with neuromuscular conditions. Her research interests are focused on providing novel treatments to children with neuromuscular conditions and has been involved over the last 15 years in clinical trials, some of which have led to FDA approved drugs that are changing the course of pediatric neuromuscular diseases.
Carolyn Kelley, DPT, PCS
Physical Therapist
Children’s Hospital Colorado
Carolyn Kelley, DPT, PCS is a physical therapist at Children’s Hospital Colorado. Her specialty is pediatric neuromuscular disorders, and she also works in the neuromuscular clinics at Children’s Hospital Colorado. Carolyn is a clinical evaluator for neuromuscular trials, including therapy trials for SMA and DMD. She is part of the Children’s Hospital Colorado SMA newborn screening program and foot management teams. Her professional interest is early identification of children with neuromuscular conditions, early mobility and getting children and their families participating in community programming and adaptive recreation. She is a volunteer with Adaptive Recreation for Childhood Health (ARCH) which is a program that helps kids with physical disabilities participate in sports and adaptive recreation.
Our Community Webinar Series is focused on ensuring that our Duchenne community is “better prepared” for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | info@jettfoundation.org
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Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.