Welcome Packet
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About Duchenne
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Duchenne News
The latest from our partners.
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Female Carriers
Resources, Care, and Programs
Community Ambassadors
Meet our Community Ambassadors
Clinical Trials
A quick look at investigational drug studies
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
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Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Toolkits
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Our Resources
Become a Partner
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Host a Webinar
Learn about our community webinar series.
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Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
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Clinical Trials
A quick look at investigational drug studies.
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Duchenne News
Stay up to date with the latest discoveries.
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Book: Dan And DMD
This book will help parents and guardians as they prepare to talk to their children about Duchenne.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
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Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
About Female Carriers
Facts and information about female carriers.
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Resources for Carriers
Tools and materials for female carriers.
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Connect with our Specialist
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Carrier Conversations
Join a carrier support group session.
Upcoming Events
General Resources
Check out helpful tools and transition resources.
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Transition Resources
GotTransition resources and tools.
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Camp Promise
Locations and information on how to apply.
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Community Webinars
Watch past recordings on care and resource topics.
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Join Jett Foundation’s Community Webinar Series to hear from Dr. Ashley Nichols on palliative care, a medical care focused on relief from pain and symptoms of illnesses and diseases.
Palliative Care Webinar
Thursday, June 13, 2024
1pm ET | 12pm CT | 11am MT | 10am PT
Dr. Ashley Nichols moved from Texas to Alabama to complete a combined Internal Medicine-Pediatrics residency as well as her Hospice & Palliative Medicine fellowship at the University of Alabama at Birmingham before joining faculty in 2011 in the Center for Palliative & Supportive Care. She works clinically on both inpatient Palliative & Supportive Care teams at Children’s of Alabama and UAB. In her time at Children’s, she sees patients one afternoon a month in an adolescent/young adult MDA clinic where she joins the other MDA providers to serve as an embedded palliative physician. For several years, she also served as the Summer MDA Camp physician which was the highlight of her year.
Her educational efforts center around serious illness communication as a VitalTalk Senior Facilitator and member of UAB’s Advanced Communication Training Scholars; she helps teach providers to have meaningful conversations with patients and families as they navigate complex decision-making across their healthcare journeys. In addition, she serves faculty for the Center to Advance Palliative Care’s (CAPC) Palliative Care Leadership Center to train hospital programs on starting and expanding palliative care programs across the country.
Our Community Webinar Series is focused on ensuring that our Duchenne and rare disease community is better prepared for those unexpected moments, challenging medical decisions, and difficult stages when on a Duchenne journey.
No one ever expects Duchenne and there is no correct way to tackle a diagnosis, but we can always better prepare. This webinar series is an opportunity to equip yourself with more knowledge, resources, and tools for those real-life, often unanticipated, scenarios.
Jett Foundation, Inc.
65 Cordage Park Circle
Suite 130 | Plymouth, MA 02360
781-585-5566 | [email protected]
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Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.