Welcome Packet
Been diagnosed or want to learn more?
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About Duchenne
Facts, Treatment, and Care
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Duchenne News
The latest from our partners.
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Transition Resources
GotTransition resources and tools.
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Community Ambassadors
Meet our Community Ambassadors
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Clinical Trials
A quick look at investigational drug studies
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Female Carriers
Resources, Care, and Programs
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Connect with our Carrier Specialist
Get support and help navigating your journey
Meet Trina
Carrier Conversations
Join a carrier support group session.
Upcoming Events
Volunteer Opportunities
Ways to get involved and help raise funds and awareness for Duchenne.
Volunteer Today
Community Ambassadors
These ambassadors are Jett Foundation’s extra ears, eyes, and voice.
Team Jett
Activate your muscles at events to raise awareness and funds for the Duchenne community.
Join Team Jett
Become a Partner
Learn about creating a partnership and joining our community.
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Host a Webinar
Learn about our community webinar series.
View Upcoming Webinars
Resource Library
Read about our resources for Partners.
Resources for Partners
How To Help
Make a difference in the lives of those living with Duchenne.
Get Started Volunteering
Clinical Trials
A quick look at investigational drug studies.
Read More About Clinical Trials
Duchenne News
Stay up to date with the latest discoveries.
Read Now
Dan and DMD & Other Books
These books will help parents, guardians, and individuals as they navigate a Duchenne diagnosis and journey.
Read Here
Our Insurance Flight Plan
Our Health Insurance Flight Plan breaks down options that may be available to you.
Download the Flight Plan
Resource Library
Read about our resources for Medical Professionals.
Resources for Medical Professionals
Join fellow moms in the Duchenne community for a night filled with love, support, and helpful resources for your Duchenne journey. On December 5, 2022 at 7PM ET, we will be discussing adults (18+) who live with Duchenne.
Porch Nites are always free and open to all discussions. By coming together, we help educate each other, create new relationships, and form valuable connections.
Porch Nite: Adults Living With Duchenne
Monday, December 5, 2022 | 7:00PM – 9:00PM EST
Porch Nite was founded in 2018 by two Jett Foundation Community Ambassadors and moms of children affected by Duchenne to bring love, support, and laughter to mothers affected by Duchenne across the United States.
Our Porch Nite program is often held virtually. Each Porch Nite will be live via Zoom at 7:00PM ET. Porch Nite is free and open to anyone who wishes to join and bring up all discussions they wish. After you register, you will receive an email with the details to join the Zoom call.
Jett Foundation continues to promote and assist family support groups such as Porch Nite to help build stronger support systems, relationships, education, and connections across the Duchenne community. Visit one of our Family Support Group events to obtain resources and learn more from others in the Duchenne community!
Tune in on February 29 to hear from our panel and moderators on how they are accomplishing goals and living life to the fullest!
Your gift helps Jett Foundation provide programming and opportunities, such as Camp Promise, to many families impacted by Duchenne muscular dystrophy each year.